Exactly.
Given there is no ‘bottom-up’ science to support any of this stuff (with Menieres there’s arguably a little more, but still no conclusive evidence on what causes it or even vertigo, one of its primary symptoms), it’s just a matter of ‘belief’.
Some say that use of preventatives proves its migraine. But that’s a totally bogus argument because no-one knows what’s causing the migraine, which might easily be some issue in the inner ear (in the case of MAV, would explain why we experience a different set of symptoms to those who have ‘regular’ migraines).
It seems to me that what’s happened here is some neurologists put out a new hypothesis of what was causing symptoms for a subset of “Menieres” patients and then took that population for themselves by defining a condition that brought them under their umbrella.
This hypothesis relies on a strong association between migraine and vestibular symptoms, but association is not causation! It could just as easily be the other way around (and that’s what I personally believe).
25 years ago we’d have all had “Meniere’s”
But that’s nothing to celebrate, its just a land grab by a specific set of doctors who share a particular ‘belief’. Shocking really.
Yes, separating these two conditions probably DOES make sense, but it DOESN’T mean the causative chain is any different. It could still be an issue with the inner ear, just not the same as ‘Classic Menieres’.
So all that really matters is what makes you feel and get better!
There’s no doubt that our particular brand of vestibular condition does at least have a clinically proven, effective protocol that improves the quality of life of patients considerably. The clinicians are not the problem! The guys in the lab need to catch up!
If you are not losing your hearing and your symptoms are generally improving, focus on that.
I hope medicine sorts itself out in the meantime!