Hi everyone. This is a very helpful, supportive and educational resource that I just discovered. If anyone has had similar experiences dealing with managing VM with other conditions, please share your thoughts. Here is my story.
I was diagnosed with VM during my second 6 week protocol of biofeedback/brain coaching at my second neuro-rehab. My accident occurred in September of 2020 and also included a neck injury. I had preexisting PTSD, CRPS and multiple previous concussions. Unfortunately, I was politely discharged from the second neuro-rehab because I was not improving and told to report back in 3 months when my pain was managed. I was extremely frustrated, operating with damaged cognitive processing, unable to multitask, process order, walk a straight line, drive or manage my own complex healthcare needs. I am currently in the process of moving all my healthcare providers under one roof at the level 1 trauma hospital located close to my apartment. I have already undergone my first pain management procedure, and completed my intakes at the migraine and neuro-rehab clinics. I’m just waiting for orthopedics and PT intakes and follow-up appointments. If this situation doesn’t work, the medical director at my first neuro-rehab hospital has suggested inpatient treatment at a specialized TBI/Spinal Injury rehabilitation hospital. I’m a bit scared about going the inpatient route and wondered if anyone else has had to navigate these waters and may have some advise.