New member here. I actually had never heard of Migraine Associated Vertigo before I happened across this website while googling my symptoms, but I suspect it may be at least part of my problem.
I was recently diagnosed with pretty severe obstructive sleep apnea, although I’m pretty sure I’ve had it for about 10 years or so. It actually took 4 sleep studies (with MANY other tests in between) to diagnose my condition. I wasn’t able to sleep at my first 3 sleep studies. The doctors kept insisting that, according to the test results, I had slept during the sleep studies and that I didn’t have sleep apnea, although I knew for a fact that I never fell asleep. The last doctor was the only one that gave me a sleeping pill to take before the sleep study. I slept the whole time and, sure enough, the test showed I had severe sleep apnea. I’ve come to the conclusion that my brainwaves sometimes make it look like I’m sleeping when I’m actually still awake. My current doctor also had me take a multiple sleep latency test, which consists of taking 4 or 5 10 minute naps every 2 hours while they record your brainwaves. He said I achieved REM sleep in 4 out of 5 naps, which is apparently very unusual. I know for a FACT that I didn’t sleep a wink during any of the naps.
First we tried CPAP, but I could never fall asleep with it on, so I had my uvula trimmed, my turbinates and base of tongue shrunk, and pillar implants installed in my soft palate. I went back for another sleep study and my sleep apnea is better, but still not gone and I really don’t feel any better. My doctor prescribed me Provigil, which made me feel slightly more alert and able to focus at work, but also made me feel kind of jittery so I stopped taking it since I feel tired, yet kind of wired and jittery already. I think the chronic sleep deprivation has caused stress and anxiety.
Does anyone here also have sleep apnea? Can sleep apnea also cause MAV? I was having bad dizzy spells at first (several years ago). Not exactly spinning, but more like my eyes were going back & forth very quickly. I couldn’t even go to work for 3 weeks because I was too dizzy to drive. The dizzy spells eventually subsided but left me with a 24/7 imbalance/lightheaded/foggy head feeling. My eyes feel heavy & tired all the time. A couple other symptoms that started around the same time and have been constant ever since are tinnitus and lots of floaters in my vision. I also have a hard time with too much visual stimuli. Shaky scenes on TV are hard to watch and sometimes it’s hard for me to maintain eye contact while having a conversation with someone because it makes me dizzy. I also occasionally get sparks/flashes in my vision, often after blowing my nose. I used to get a lot of headaches mostly behind my right ear but never had really bad “migraine” type headaches. None of my doctors have even mentioned anxiety, but I think the dizziness causes stress/anxiety which makes my symptoms worse. My blood pressure & pulse are kind of erratic and I get hot & sweaty, mostly around my head & neck.
Does this sound like MAV? I realize sleep apnea is probably the root cause, but I’m wondering if I may be suffering from MAV as a side effect and maybe could benefit from some kind of migraine therapy/medicine.
Any info/advice would be appreciated. Sorry for the long email. I’ve been suffering for a long time.