I’m really hoping y’all can help me out a bit. I’m trying to figure out what is ailing me. In june of last year I had a horrific episode of vertigo. Lasted for a good day and was accompanied by nausea, bowel ick, a general off feeling, fullness in my left ear, headache, etc. Left me totally wiped out. Some vision wackiness, but I’m not sure if it would be considered aura or not (like I can’t open my eyes all the way, vision kind of off, left eye feels more on task than right, and like I can’t focus quite right). Took me almost 8 weeks to fully recover. Tried steroids, meclazine, lo-sodium diet, diuretic, etc. ENT diagnosed me with Menieres.
In December, I had a more mild but similar episode so I went to see a neurotologist. Ended up doing a full ENG. Some signs of weakened balance response/vetstibular loss on my left side, but nothing that shrieked Menieres or BPPV as a solid diagnosis. Hearing 100% ok. They did the testing in stages - if you respond appropriately we’ll move forward with testing. So things were amiss along the way, but not enough to point solidly to one thing.
Neuro felt the Menieres diagnosis was incorrect. He thought it might have been a vestibular illness that was taking a long time to heal or possibly MAV.
Huge family history of migraines - mom since she was 3 y/o has them weekly and takes Imitrex, her mom gets occular migraines with aura, brother gets migraines and I get one or two per year (the all I want to do is lie still in a cold dark room until my head stops throbbing kind).
Yesterday I started into yet another ugly epsiode with vertigo and all. Same symptoms as last June. Roughly the same point in my menstrual cycle as well (right around ovulation) - I’m not sure if there is hormonal aspect to migraines or not. Allergy seaon too. And stormy which means wild swings in atmospheric pressure.
I feel like crud. It is like a nasty hangover. I can’t walk straight. I still feel sick to my stomach on and off. My vision is wacky. Ear still feels full. And I’m physically wiped out. I don’t have a headache, but my head doesn’t feel normal. I’m spacey and very forgetful. Can’t seem to focus with a darn on anything.
I’m frustrated. I would feel so much better and more in control if I could get a firm diagnosis of what this stuff is. Something is clearly amiss and if it is something I can help prevent I want to do that! I really dislike feeling so incredibly wiped out and helpless.
Any suggestions are welcome. I’ll be talking to my dr tomorrow and suggestions for questions, information I should pass on to him, etc would be welcome.