Actually I lost hearing suddenly, in 2008–diagnosed with cochlear hydrops, and that progressed, and finally the vertigo developed in 2011, then diagnosed with Meniere’s and got so bad that in 2012 I had Endolymyphatic shunt surgery in the bad ear.
Since then–no more vertigo! But–some ‘close calls’, meaning I have very bad dizziness daily and on occasion I have felt like the room was about to move and on 2 occasions I was ‘pulled downward’ and had to sit a min. and it passed.
But ‘no more vertigo’!
I’ve had acupuncture treatment, 12 treatments, and that didn’t work! So now I am currently trying a 3 week dosage of anti-virals (reluctantly prescribed by my G.P.) and I seem to be 'more dizzy than ever!
I could not believe I might have MAV, since I don’t have vertigo anymore–and also because I couldn’t believe one could have daily migraine symptoms–like the awful dizziness, sometime with nausea, but not always. Someone on the Meniere’s forum suggested I check out this website.
I cannot tolerate malls for any length of time, and large stores give me big problems, as does trying to sing-like in choir (had to drop out of that) and even the sound of my own voice after a couple of songs makes my head ‘vibrate’ inside, causing more dizziness.
I wear bilateral hearing aids and they have helped–alot! Restaurants are a problem and large groups of folks talking are too.
I rarely have bad headaches–that is why it’s hard to thing I have MAV! I used to suffer badly from migraines–but am in my mid 70’s now–female and those have passed. I do get headaches though–sometimes waking me up during the night and many times after a day of bad dizziness–and take Tylenol only to help with those.
I was told by 2 Neuro doc’s that there is a condition called ‘silent migraine’ where one has all the symptoms of migraine–but the pain.
Is that what MAV is? I also read where Paxil has helped some here–so plan to ask my doctor about that. I’ve tried various anti-depressants due to all this but none have been tolerated. Do take low dose Xanax and that helps me deal with this daily. Only take 2 in a day most of the time.
Would appreciate any one else here commenting as to if this is what they deal with and what has helped them.
I plan to run this by my Ent next month and my GP also. Just do wonder why one would have ‘daily migraines’ when they usually only happened once a month and sometime more often, but rarely when I was younger.
This is long, but needed to get the info correct so hoping to get some good comments, suggestions from those here who have gone thru this. Mother had Meniere’s too–lost her hearing dealt with drop attacks–so have I, but those are now gone!
So, would appreciate any comments anyone has for me. Thanks