I’m new to this forum, but wanted to post a quick note about this NPR news article on a new book called “The migraine brain”. I just got the book and there are some interesting points on migraines with vertigo.
npr.org/templates/story/stor … d=96562625
There is also a 20 min podcast that is well worth a listen. Some interesting news and latest research…
npr.org/templates/rundowns/r … =11-4-2008
Great post! Thanks for making us aware of the book and podcast.
I was a little disappointed in her definition of migraine though. Bernstein seems to pigeon hole migraine as only being the unilateral pounding headache with nausea and vomiting. Clearly that is only on branch of the tree. Perhaps she expands on this in the book and realises that migraine brings dizziness and can appear without headache or appear as a tension-type headache.
I was really excited to see this book in the bookstore a few weeks ago and got it out of the library right away. I have to say I was very disappointed to see little if anything about MAV in here. And other than “Heal Your Headache” I have not seen this topic mentioned in any book. Of course this makes me wonder if this disease really exists or did someone just make it up to give a name to some symptoms that didn’t seem to fit any other disease. It’s hard for me to understand why, if this is a real disease, is it so hard to find a doctor who has even heard of it.
I have to wonder this too about why so few doctors have a clue about MAV. Seeing that millions of people see their doctor every year because of dizziness, i can’t understand why MAV isn’t talked about more. There isn’t one person in my life who I have told that I have MAV, and they have said, “Oh yeah, I’ve herd of that.” What a lonely illness!
I think part of the problem is differences in terminology. MAV is not a formally recognized diagnosis. It is more of a descriptor. There are several other terms used for what we experience also. What we have is migraine. The problem is when you use that term, most people think of headache. For most of us, headache is not our primary symptom. Try doing a search for silent migraine. It is another informal term for what many of us have. Check out this link: Silent Migraine