I’m not a medic. Just another sufferer. Not surprised you had to ditch those two drugs. They are pretty heavy and as the migraine spectrum makes us more med sensitive - more hyper-sensitivity - than the average bod, no surprise. Never taken them, just read about them but think they are regularly dumped by MAVers. Don’t worry. Guess the Powers That Be wanted to it it hard and fast. With MAV they generally start with the other two preventative drug types, either betablockers or antidepressants but it depends on comorbidity, age etc, etc. I take a betablocker, Propranolol, which is old, here since the 1960’s and regularly attempted to treat MAV. You’ll find lots of info on the Welcome section but best practice with all drugs is titrate up low and slow and be prepared to wait to see results. It’s months rather than weeks. 6-8 weeks before they really kick in, four months before you make drastic changes etc. Everybody starts off in a great hurry for results which is natural but remember too many quick changes/intros and you won’t know what’s helping with what or which is causing that side effect. Also it can be some time before you really know if a drug is/isn’t helping you…
Can I just ask couple of questions pls. You have been told this by an expert, a neuro-opthamologistt or similarly eminent bod I presume.
How do you acquire CI? As a result of MAV/trauma or were you born with it? Or don’t you know maybe?
Theory is ALL Symptoms produced by the MAV will cease if the preventatives effectively control the MAV. Theory again, (not mine, not that clever, the emminents) the preventatives work by increasing the trigger tolerance threshold.
It figures you don’t get long remissions. If CI is the main trigger, it’s hard to avoid extensively using yr eyes. We do it all the time. Chocolate, coffee or red wine would be a better option. If only we had a choice. Certain lighting conditions appear to be mine. It’s so much easier to avoid chocolate.
Knocks and bumps to the head. Alot of MAVers have touch sensitive skin. Sometimes I can’t bear to point of back of my head on the pillow.