Thatās great!
Wirral at present, moved up during pandemic ![]()
Thatās great!
Wirral at present, moved up during pandemic ![]()
Have you seen Dr silver?
Unfortunately not. I was with Bamiou in London for a while, then saw Lutton briefly and was subsequently discharged. Iāve made huge progress since the bad old days. Iāve stuck around here because I look after the site :). Otherwise Iād only log in once every 6 months I think.
I really love the statues on Crosby beach btw ![]()
After recently seeing my new specialist (after nearly 7 years of hell and torment and not knowing), she has uncovered whatās actually wrong with me. She listened to my story and looked at my test results from other clinics and arranged a test which is actually very hard to find and new in the UK! It confirms that I have isolated otolith dysfunction, a type of PPPD. The virus I got in my ear affected only my right otolith, which Normal ENT tests donāt cover. She said my vestibular function results apart from that could be in a textbook!
If anyone is still unsure of their diagnosis and need that last piece of the puzzle then I urge you to look into otolith function testing, itās quick and not unpleasant at all. Hypatia clinic in Liverpool is amazing as is Amy who couldnāt have been nicer. If Iād stayed at the Walton centre I donāt think Iād have sorted it out. I was given migraine type things which did absolutely nothing so Iām so glad I took matters into my own hands.
Glad youāve found a diagnosis you can believe in ![]()
I personally found this a real struggle and I spent a lot of time & money on seeking different opinions.
@Leagueofgentlemenfan consider starting a Personal Diaries ![]()