I’m 26 and from Germany.
Unfortunately vertigo isn’t my only (possibly migraine-related) symptom but the last recent one.
My journey into this nightmare began with various visual symptoms: visual snow (had mild VS as long as I can remember), increased afterimages, increased awareness of floaters, light sensitivity, difficulty with visual processing and a lot of other weird stuff.
My other symptoms include: vertigo, tinnitus, lightheadedness, depersonalization, nausea, balance problems, paresthesia along others.
Except for some mild visuals that I had all my life, this crap started 3 years ago after a bad migraine attack triggered by alcohol. Since then new symptoms are popping off every few months without ever going into remission though I “enjoyed” a 1,5-2 years break where my symptoms remained stable. Except for this single migraine attack 3 years ago I don’t get them anymore (and didn’t use to get them on a frequent basis before), at least not in the “standard” variant. Instead I have nearly constant head pressure and sometimes I get some migraine-like pounding pain that last for a few seconds. I also often get neck pain or pain around my eyes which usually stays for longer periods. Especially the latter type seems to be connected with the progression of existing and appearance of new symptoms.
Since 1 month ago I also get those rocking sensations, especially when lying in my bed. This began after a cinema visit and goes along with a lot of dizziness/depersonalization/nausea which frequently develops in what appears to be a panic attack. I now get those nearly every week. When this first happened I freaked out and landed in the ER. Now I’m doing my best to stay calm in these situations. Nevertheless, these attacks keep getting worse each time. So I’m not really sure if they are in fact panic attacks. They just come out of nowhere and I have the feeling that the anxiety is more the result of the symptoms rather than their cause but that’s just my impression. They can also last for days with one attack turning into another and I feel like crap all the time (it’s definitely the most intensive and frightening feeling far above everything I have ever experienced before). Also my visuals and other symptoms are going nuts then.
So far no doctor was really able to help me. Needless to say that every medical test (MRI, VEP, EEG, tons of blood works) came back clear. I’m feeling out of options now and don’t know what to do. I’ve tried a few meds but none seemed to help so far. I’m currently on a beta-blocker, topamax and was advised to go on an SSRI (Celexa) to fight the depression (my doc thinks I’m at risk for suicide). During the last attack I took a benzo but this is not recommended as a long-term solution (and it didn’t help much).
My biggest fear is that I suffer from progressive brain damage (and there’s actually some scientific evidence for this) and that I’ll never overcome this condition. This already has ruined my life and it just keeps getting worse. I haven’t left home for a couple of weeks, I’m just unable to function anymore. I all have is the support of my family for which I’m thankful.
I would love to hear from other people’s experiences and how they cope with this on a daily basis . Maybe there’s even someone out there who has the same or a similar symptom set and can relate to my situation.
Thanks for listening