Neurologists to keep and which to sack?

My name is Sue, and l have had 3 bouts of migraine related vertigo withing one year, lasting for 3 weeks at a time. The spacing between the first and second attack was 8-9 months, and between the second and third about 3 months.
The third attack, which was the last one l had, which has now been nearly 3 months ago, it lasted 7 weeks, as l had many stressful events occuring at the time.
Whilst l was in the midst of this attack, l was very fustrated as l didn’t know what it was, l thought maybe l was going mad. I went to see 2 ENT specialist who didn’t know what it was, but seemed to rule out Meniere’s as they said that my symptoms were not typical meniers symtoms.
So l thought, l really must be going mad. I had such high anxiety levels and depression levels, along with everything else, l found it hard for function at all during this time. What made it even worse, was my GP, said it sounded like l had MS which occurs around my age, (40)!!! Well, that just made my anxiety go throught the roof. How could he make such a comment!!
Fustrated as l was, l thougtht maybe its worth me seeing a Neurologist and as l live at the Sunshine Coast, QLD, there really isn’t all that much to choose from.
So l went to one that was close by, and at the first visit he put my mind as ease and told it didn’t seem like l had anything serious like MS, and because l have had very strong Migraines in my early teens that this is a migraine occuring again, but in a different form. He wanted me to see a Psychiatrist, and said if l didn’t l would end up in a mental hospital. He said he could see l was completely anxiouse, which l was, and anybody would be going through what l went through.
So along a went to see this Psychiatrist, and he basically said, that l have depression and that floatiness, was a classis symptom of depression and it comes in waves like l have it. I asked him l was told it was migraine related, he doesn’t know anything about migraines, and he thought migraines, was just a severe headache and if l don’t have severe headache is unlikely it is migraine related. Now, this is where l started to think, l am wasting my time here with this guy. How can he say it is this or that, when he doesn’t have any expertise in this field?? HOW??? How can l take advice from him, when he has never done any kind of research into what migrainse are about?
So l went to see one more time a few week later, he said that he thinks l suffer from panic disorder. So now he has changed his mind.

A few days ago, when l went back to see the Neurologist to get my results back from my indepth MRI, (which were normal), he said l should still keep seeing the psychiatrist, because he thinks l suffer from anxiety. I told him l was fine now and am always a happy cheerful girl, until l get this floatiness, along with heaps of other sypmtoms. He said, he thinks l have migraine related symptoms but he doesn’t think they are all migraine related. I am starting to wonder, if l they are both friends and he just wants to me to keep seeing the psychiatrist for pure revenue??

I have read many books on MAV, and it stated that if you Neurologist ever suggests to you that you have depression or anxiety, walk away and find someone else. My Neurologist isn’t saying l dont’ have migraine related floatiness, but along with it, depression or other kind of mental illness.

You see when l go through this Floatiness, l am down and anxious and jumpy, but once l come out of it, l am fine, and back to my normal self.
I find it hard to believe l am depressed. Anyone going through what l went through would be anxiouse and depressed. I think l read the chemicals in the brain change during migraine attacks. So it makes sense to me that l would be feeling blue.

Its a terrible thing to go through and l cried every day when l go through it, and was an emotional mess. Not looking forward to it ever coming back. Can’t stand to think about it. But l have some remedies up my sleeve this time around.

Sue :?

Hi Sue,
Can understand your frustration! Have you read Scott’s MAV survival guide - there is so much helpful info. there. If you can, read some of the stories on this website - you will find many, many of us have had similar experiences with doctors & specialists who, in fact, know little or nothing about migraine associated vertigo. If you have this condition then sure, you’re going to be stressed, anxious & panic as most of have experienced these symptoms.
I was so fed up with seeing local GPs & specialists who were unable to help & one who inferred I was phobic that I recently flew from Adelaide to Sydney to see Dr Granot who totally gets the MAV brain! So worth the trip to talk to a doctor who understood my long list of symptoms & gave me a management plan. Maybe you can find a GP who’ll start you off on some of the meds which have been successful for others. And no, you don’t have to have depression for anti-depressants to help - specialists around the world treating MAV patients have found that these meds can help with preventing migraines & related symptoms. Good luck

My doctor is so non caring he thinks i am kookie despite getting letters from two specialists he knows i have symptons and have a difficult time walking my worst migraines come in waves with weather changes so l dont get much of a break from this crappy illness just when i think l find a trigger the weather changes again i am in a constant vertigious state i am on nortriptline and it helps with some of the motion sickness my family dr asked me how long i plan on having this thing time to move on to someone who will actually listen to specialists most gps are so quick to judge on illness they know nothing about

It’s an unusual neurologist that understands non-headache migraines.

It’s not unreasonable to go for help with anxiety whilst we try to get a handle on the problem that’s behind lots of the anxiety.

What I don’t see is the need to see a psychiatrist to deal with anxiety, unless the psychiatrist understands MAV and is taking over your medications from the neurologist.

Otherwise, a psychiatrist you trust might help you with anxiety.
Or a psychologist you trust.
Or a social worker you trust.
Or, hell, a minister you trust.

My neurologist sent me to an otologist he trusted, who said hey, I’m not going to give you an appointment, see this neurotologist. Meanwhile, I had a few appointments with a psychologist I trust, to help me deal with the crazy-making affects on my life.