Hello,
Thank you for reading my post and was very happy to find this site. I was recently at the neuro-oto and he believes I may have MAV. Four years ago I started having the dizzy feeling and had all the tests done. MRI, blood tests, CT scans, ENG’s all came out normal. He perscriped me a very low dose of verapamil at that time and I did not see a difference in my symptoms. I was only on 40 mgs, which by reading these posts seems very low. Anyway, after that I was given another low dose of valium which seemed to help me get over the symptoms. Within the last four years, the dizziness has come and gone about 3 times, each episode lasting about 3-4 months at a time, with no clear cut diagnosis and/or treatment. The dizziness eventually just fades away. It feels as though I have spun around a few times and the dizziness just never wears off. My doctor says that this pattern of going away and coming back could certainly be MAV, and am on verapamil again, titrating up to 120 mgs. a day. I still haven’t seen an improvement. Other symptoms include visual things such as seeing “rain” or “sparkles” if that makes sense. I do not have any “typical” migraine headaches although I remember having about 5 as a child. I remember I would see an aura and then a bad headache would come along. Anyways, I also have extremely bad anxiety with dealing with this 24/7 dizziness.
Does this sound live MAV??
ANY suggestions, input,or related stories, is GREATLY appreciated!!! My doctor said verapamil is one of the best migraine preventative medicines and I am a little scared that is not working.