New Hain Patient

Hi Guys,

I just became a new Hain patient - by phone consult.

Boslee noticed that I had no guidance during my Topamax titration. He PMd me and offered me help. He gave me in great detail what Hain’s instructions are. Hain manages Topamax very closely and non-routinely. I got up to 100 mg without a hitch. Boslee also informed me that he was a Hain patient by phone. Well, i have a phone!! So i got on the phone :!:

Anyway, I talked to Hain today for the first time. What a very very human guy. I felt his genuine empathy while listening to my symptoms. He showed no signs of arrogance and even giggled a couple times - once when I asked him a question he wasn’t sure how to answer and again when I told him how much we thought of him on this forum. It was a really great experience.

He made me no promises. He told me that most of the time Effexor along with Topamax works, but not always. He had some backups, two of which i was contraindicated for (CCBs and BBs) as well as TCAs (yuck) or more Topamax.

I started my Effexor today. I ate myself a big meal (you can get real sick otherwise) took out a capsule, looked at my husband and said, okay, i’m ready for one for Satan’s tic tacs, poured it out onto a piece of paper and divided those pellets into 8ths - much easier than cutting Zoloft into 8ths!!! Of course i wasn’t going to go by his 1/3 recommendation :slight_smile:

You have to pay cash and the first consult costs $250 - not covered by insurance usually, which gives you an hour of his time. And you know what, lots of the big guys do phone consults. All you have to do is call their office and ask.

Just thought I would put the word out in case somebody is lacking a good MAV doc.

Thanks Bos, i owe ya!

Julie

Hi Julie

So glad to hear you had such a positive experience with Hain today. I don’t suppose he does international telephone consultations?! :wink:

I will be waiting with bated breath to hear about how you get on with the Effexor!

Becky

Sure Becky, why not? I’m just not sure he could prescribe internationally. I would be happy to call his office to find out. i’ll do that today once they open.

JJ

I am a patient of Dr. Hain’s. I originally strated with him as a Meniere’s patient and have graduated to being a MAV patient as well! : ) Love him and his demeanor, he is, as Julie said, one of the most laid back non-arrogant normal people you would ever meet. And the bonus is he is a genius in his speciality. He quietly goes along and has a HUGE arsenal for a plan of attack on the dizzies, everytime I leave his office I am rejuveniated and hopeful…

Hey Julie,

Glad to hear that your working with Dr. Hain. He appears to really know his stuff. Wishing you the very best and hopefully you are able to make an enormous progress!

Joe

Thanks Joe. And Becky, yes he does phone consults outside of the country. Here is his phone number: 312-274-0197.

Good luck,

Julie

— Begin quote from “Julie”

Thanks Joe. And Becky, yes he does phone consults outside of the country. Here is his phone number: 312-274-0197.

Good luck,

Julie

— End quote

Hmmm, that’s interesting! Perhaps my doc and I can agree upon something and use Hain as a consultant some way or another. :slight_smile:

Great idea, Tranquility!

BTW, he’s in Chicago, which is Central Standard Time

One thing he was clear about, and i know that in his field, this is debatable, is that Zoloft is no good for migraine. Anybody out there had an experience that proves otherwise? I know it didn’t do anything for mine.

The other thing I asked him was about hormones. He said that as long as I was solidly postmenopausal, (he asked if I was having hot flashes or other symptoms to indicate differently) there was no need to have my hormones checked - it would not change the course of my treatment, even though my MAV came on during my perimenopausal years. I did not pursue his feelings regarding woman who are having MAV and are currently perimenopausal.

It was my pleasure Julie. the way I see it, we are all here to help each other as best as we can, and although i can’t PERSONALLY offer a whole lot, because I only got hit with this thing in december of '07 lol and i’m still trying to figure out my OWN case (with hain’s guidance), i figured passing along one of the best in the field to someone who seemed like they were doing their medication trials more or less alone was the right thing to do. i’m really glad I did, and i’m glad you got in so quickly and are on your way with new medication trials.

regarding the zoloft,…i asked him the very same question about other SSRI’s in general, and of course, got the same answer you did :-). he was very clear about this. they don’t work for migraine, he said. I believe him that in most cases, where migraine is the main factor, a typical SSRI might not do the trick. But, SSRI’s have helped people in our situations, but perhaps for other reasons. he really didn’t elaborate. but i have spoken to some other mav’rs, mostly men interestingly enough, who HAVE gotten good results with other SSRI’s, which makes me wonder if in these situations if migraine was the precipitating factor. I say that because in speaking with these men, we talked a lot about our anxiety. Scotsman posted a great article here on a condition called MARD, “migraine-anxiety related dizziness” that i just saw (sorry, i’m slow on reading the forum lol). Just read the whole thing. this is all new to me but perhaps that could explain why SSRI’s seem to work in some people with this chronic dizziness and not in others? SSRI’s, according to the article, are very good for people where anxiety is the precipitating factor if I read it correctly. Scotsman might be the one to jump in here with this as i’m just turning the wheels lol so-to-speak, and could be interpreting this wrong. But if this has some merit, it COULD be the main reason the zoloft didn’t work. Just a thought, and i’d love to hear some thoughts from anyone on this in regards to SSRI’s and migraine.

oh, i wanted to also add that i was also very impressed when i got the PM from julie that she had her phone consult, got her effexor filled, had the capsule opened and sorted out, and already had her dose down and it wasn’t even 4 hours after the consult lol. This lady knows how to get things done! :slight_smile:

Boslee

— Begin quote from “Julie”

Hi Guys,

I just became a new Hain patient - by phone consult.

Boslee noticed that I had no guidance during my Topamax titration. He PMd me and offered me help. He gave me in great detail what Hain’s instructions are. Hain manages Topamax very closely and non-routinely. I got up to 100 mg without a hitch. Boslee also informed me that he was a Hain patient by phone. Well, i have a phone!! So i got on the phone :!:

Anyway, I talked to Hain today for the first time. What a very very human guy. I felt his genuine empathy while listening to my symptoms. He showed no signs of arrogance and even giggled a couple times - once when I asked him a question he wasn’t sure how to answer and again when I told him how much we thought of him on this forum. It was a really great experience.

He made me no promises. He told me that most of the time Effexor along with Topamax works, but not always. He had some backups, two of which i was contraindicated for (CCBs and BBs) as well as TCAs (yuck) or more Topamax.

I started my Effexor today. I ate myself a big meal (you can get real sick otherwise) took out a capsule, looked at my husband and said, okay, i’m ready for one for Satan’s tic tacs, poured it out onto a piece of paper and divided those pellets into 8ths - much easier than cutting Zoloft into 8ths!!! Of course i wasn’t going to go by his 1/3 recommendation :slight_smile:

You have to pay cash and the first consult costs $250 - not covered by insurance usually, which gives you an hour of his time. And you know what, lots of the big guys do phone consults. All you have to do is call their office and ask.

Just thought I would put the word out in case somebody is lacking a good MAV doc.

Thanks Bos, i owe ya!

Julie

— End quote

Julie

Thanks so much for finding that Hain does international consultations, I’ll definately be considering it as my next option.

Becky

— Begin quote from ____

oh, i wanted to also add that i was also very impressed when i got the PM from julie that she had her phone consult, got her effexor filled, had the capsule opened and sorted out, and already had her dose down and it wasn’t even 4 hours after the consult lol. This lady knows how to get things done!

— End quote

Bos,

I learned that at my mother’s knees - I was the oldest of 11 kids. Nothing would have gotten done if i hadn’t been 12 steps ahead of the game. It’s a gift and a curse. I’ve been known to - oh, never mind, if i told you, you’d start to think i’m OCD :slight_smile:

But wait til you hear this, talk about resourceful! Bos, instead of having to worry about divinding those silly capsules up, had his PCP write him a Rx for Effexor and took it to a compounding pharmacy. Kripes, I have a compounding pharmacy not 10 minutes away! :slight_smile:

That MARD article is great. The first time I read it i didn’t have as many brain cells as I do now. Thanks for pointing it out again. I’ll take a second read this weekend and see if I can provide any input. Would love to hear from Scott about it cause your question is a good one. They specifically say that SSRIs effect the vestibular system. Jen, is also interested in this article.

Talk soon, Bos, you’re still my hero (i just said that to make you blush in public :slight_smile: )

Julie

Thank you Julie and Boslee,
Mard anxiety migraine?
I’m sure I’ve got it all
I wish I kept everything I’ve read over the years.
A while ago I was reading about ssri’s I’m sure the reason they’re no good is they have the potential to constrict the blood vessels in the cranium.
I’d think we should pop that on the FAQ file?
My memory is poor but I think that might be why.

If someone’s migraines or Mard is helped along by stress/anxiety/depression.
Then yes any antidepressant should have a significant effect in the reduction of symptoms.
When I came back from my living nightmare 1-year working in china.
I first started my new life with MAV
I got myself off to a not very helpful specialist, who sent me packing with no help, so I then went to a stupid gp :twisted: Well I didn’t feel anything after that NOTHING!!! Except for some bone crunching back breaking clenching. I laid on the sofa for about a month and didn’t move.
I’m surprised I didn’t go into serotonin syndrome, considering these days even 25 mg puts me into insomnia from hell
After about a month or so my rocking disappeared, completely
So there for the migraine cycle was broken by zoloft right?
So in some cases SSRI’s do work.
Or was it my migraine cycle had run its course?

The 2nd time it didn’t work.
The 3rd time it didn’t work.

Some people also say, SSRI”s seem to help with motion intolerance
I know they do for me.
Not the migraine.
Due to it taking some of the anxiety away?

I’m going to have to read that MARD article again
thanks Scott
jen

Hi Julie and all,

This is a great thread! Very cool that you had the appt with Hain like that and also good to know he does international consults!

This whole thing with SSRIs is really interesting. I wonder if Hain would subscribe to the MARD theory? Clearly there are many of us with a prominent anxiety component to this - and let me be clear - this is NOT psychogenic dizziness I’m talking about. Rather, it’s otogenic. Given my response and others on Cipramil and Howie (from healthboards) on Zoloft, clearly ANY SSRI works for some of us with this migrainous vertigo garbage. Given the fact that Effexor also treats migraine makes it the SSRI of choice of course and one I need to check out.

I’m in a nasty relapse since dropping the St John’s Wort. I have total alien head right now, and feel totally spooked out of my skull. But what’s really freaking me out (aside from this computer screen right now) is that I have a trip to Canada planned 4 weeks from today! That’s 27 hours in a jet. I have to get this thing sorted and fast. Because I know Cipramil didn’t kill me and worked previously I’ve opted for Lexapro (it’s the same stuff essentially but cleaner as they’ve removed the R enantiomer and just left the active S molecule).

Really hope Effexor mops all of this up for you Julie.

Best … Scott 8)

Hi Scott ,
when are you starting the Lexapro ?

Hi Jenny,

I started it 2 days ago - starting at a very low dose; just 1/8th for a few days then will up it to 1/4 on around Wednesday. It’s definitely making me dizzier as I expected. I’m staying with it though, hell or high water.

Scott 8)

good one Scott, I was just on crazy meds reading up on it, I’ve been tapering off zoloft its been a shithouse two weeks, I know how you feel, I’m dead inside.
they say it only take a week or two for ssri’s to kick in , I found zoloft worked pretty dam fast for me.
I hope every ting picks up real quick for you mate.
thinking of you.
:cry:
jen

Jen, here is the link for the article Scott posted on MARD:

mvertigo.org/articles/migrai … ess.05.pdf

Scott - my husband was on Lexapro last year, because i was so sick he got depressed. He got dizzy from it and it was pretty bad for a couple of weeks. He also found himself, for a few days, feeling an extreme apathy, like if the house were burning down, he would just sit there. That went away also.

Good luck with the lexapro, i know you’ve been looking forward to this trip for a very long time.

Julie

Edit: He wasn’t dizzy all the time - they were dizzy spells, lasted moments :slight_smile:

Hi Julie,

Thanks for the info. Well, I can tell you this: I’m crazy dizzy this morning and here I am going to work! I just can’t believe the stuff we live through sometimes. This screen is all over the shop … and this week I have a huge guideline on type 2 diabetes to finalise. On Aug 7 I have to present it all to a steering committee!! Imagine doing that off my face … God, I hope not.

Jen - hang in there on Zoloft. It’ll start to feel better soon. I am coming off SJW as I introduce Lexapro. It’s all ugly stuff but will hopefully be much better soon.

Scott 8)

good luck with the presentation Scott,
man I REFUSING to get out of my pajamas lately let alone get to work .
you’re amazing Scott.
thanks Julie ,Igreat minds think alike I heard the email come through, just as I was re- reading it already.
Its been a while since I’ve read it.
I’d forget most of what was in the article, lol
it might stay in my head a little longer the second time around.
:oops:
xxxxxxx very crazy med head jen