New here and confused

Hello!
I recently joined this forum, hoping to get some advice. I know you are no doctors, but I think you have some experience in all that vestibular crap.
I have positonal vertigo for half a year or so. Most doctors I visited said that it was untypical BPPV, untypical because I have no nystagmus. One doctor (ENT) suspected MAV. I have a monthly episode of migraine, which lasts for two or three days. But the positional vertigo occurs regardless of the normal migraine episode. The BPPV (if this is the right diagnosis) disappeared for a few weeks, but reoccured when I lay on my right side and got up in a weired movement. It always happens when I am laying on my bad right side. The vertigo lasts for only seconds, maximum is 20 seconds.
I’m confused beacsue I have no nystagmus. But especially the nystagmus is important to diagnose BPPV. I have the postional vertigo now for 3 months non stop. My brain adjusted to the vertigo, I only get it now when I bend forward a lot or when laying on my right side in bed. During the vertigo spells I have no light-sensivity or nausea or anything else migraine-related.
I’m 22 years old and female, pretty young for BPPV. I haven’t done any maneuvers, because I am very afraid of that spinning feeling. The vertigo, if it disappeared for a time, is always triggered by special head-movements.
I’m very afraid that it could be MAV, though the symptoms are 99 % BPPV. Can you help me by posting your opinions? That would be wonderful.

Greeting and hugs,
Vicci

Vicci
Six months of this s%^& without a diagnosis and treatment is enough!

I have Vestibular Migraine and have had three bouts of BPPV and there is no difference in the nature of the vertigo! The only clue is the cause of onset and whether the Epley stops it. The nystagmus (which can be very fleeting) is not always obvious and often needs the special glasses to be observed. I’ve found it works best to get a professional to do it - they are much more confident and precise.

However, with the ongoing nature of your vertigo perhaps it would be a good idea to see a good neurologist who specialises in MAV. “Most doctors” really haven’t a clue about Vestibular Migraine or it’s treatment so it is worthwhile to try & track down a good doctor and get an expert opinion. Vestibular Migraine has many “faces” - which don’t always conform to what we think of as ‘normal’ migraine symptoms, eg vertigo without headache is common.

Good luck & keep us posted
Barb