Arenât you rather oversimplifying it. As your MAV seems certainly to come from the âwater in the earâ trauma, it did eventually heal with time,so the vertigo symptoms left you. Time healing the injury obviously played huge part but didnât you also make diet, lifestyle changes too. Even small things like increasee number of pillows, not bending forwards etc, etc would have all helped, and you mightnât have done that without your further research on the root cause and the effect ear damage can have on our bodies. And you did add in a bit of Amitriptyline into the mix. We are all different and our problem stems from various causes. I know mine wasnât trauma but something closely linked to fluctuating hormones and most probably something to which I carry a genetic predisposition. Time is certainly helping me too but I feel I attribute most of my success to medication, in my case Propranolol. Helen
I was very surprised originally to be given aâprobable Migraineous Vertigoâ diagnosis after decades of being told it was BPPV but after looking in detail at my medical history amd comparing it to others on the net I could see distinct patterns where MAV appeared/disappeared/returned linked to fluctuating female hormones and I found the pattern that fitted ME! With a meaningful to ME diagnosis I was able to move forwards with meds and be grateful. Since Iâve been on meds I can certainly see strong connections to neurochemistry. Iâm sure genetics must play a huge role.
At first I wondered where (genetically) Iâd acquired migraine myself. One would obviously have to have a genetic predisposition to it in order to develop it in the first place. I can trace most of my medical idiosynchrocies back to various ancestors but not the migraine so I guess itâs just MINE. Arenât I the Lucky One. Helen
Thatâs true, but these things are so personal was wary of suggesting.
Hereâs what may have helped me, YMMV:
I also kept listening to music through headphones to a minimum for a while.
And since then Iâve noticed relapses co-coinciding with too much coffee.
These are all great ideas and likely to help. Taking these suggestions and building a strategy that works for you is the best way forward!
As Emily stated, I would clearly identify what you are dealing with. Not sure where you live, but I would highly recommend finding an doctor who specializes in MAV, Menierâs, etc. Nothing against ENTâs, but they can be quick to diagnose and then adjust when you donât respond. I spent almost a year going down a Menierâs path before finding a specialist in Denver, CO who identified it as VN. (I then went out and had 1/2 of a deep dish pizza! enough sodium for daysâŚand daysâŚ)
My sister has Menierâs and your build up sound very similar.
The treatments for MAV & Menierâs are similar, but there can be important differences that can make or break your treatment. ie: reducing sodium intake is critical for Menierâs
And to add on what James said:
- Diet: find triggers like caffeine, alcohol, sodium, etc.
- Exercise: figure out what helps and what doesnât
- Sleep: itâs the best reset
- Hydration:
- Supplements: identify what helps
- pharma stuff
Finally, take copious notes. Both for yourself and your doctors. They take you much more seriously when you are able to provide documentation. I use my phone notes. There are apps. Do what works for you.
I tracked everything when I was going through my diagnosis through identifying stable treatment. I used a fitbit and my fitness Pal along with my notes. It helped(s) me correlate events, triggers, & treatments.
(and hello, long time lurker, first time poster)
welcome! Be sure to into yourself
Has any doctor suggested a diuretic? For me this (triampterene/hctz) was the number 1 drug for helping limit the number and intensity of attacks. As James and others outlined there are other things that can help minimize them such as diet (especially limiting salt intake), limiting caffeine, sleeping in elevated position etc.
For me the attacks became horrible and have seemed to make my steady state worse after each one. So it is my main goal in life to minimize and limit them to small attacks for this reason. I have learned the signs of the start of an attack and found that if I immediately take my rescue drug (valium), sit down, and drink lots of water I can avoid a larger attack.
I think that your white noise is a form of tinnitus
and should be your clue that an attack is imminent. Perhaps you could try some techniques to avoid or minimize the attacks as I have found success doing. For me valium is the only drug that has helped. Water also helps a lot.
Initially diagnosed with meniereâs, I was told it was generally progressive and that was true for me with longer and longer major attacks (last big one put me in the hospital 4 days and couldnât walk or drive unaided for months). MAV type symptoms followed.
2.5 years out from last big one I am much better but still have significant balance issues, amd some small attacks.
I hope you can find a way to stop these attacks.