Just got back from the neurologist, 5 hours later. It’s such a long trip. Told her about how my symptoms have evolved and are a constant waxing and waning rollercoaster of awful. She’s starting me on Amitriptyline, to be paired with my Sumatriptan. If I can have a few weeks or months of what I would consider freedom where I can actually go out into the world and feel comfortable, I’ll probably cry from relief.
Also, she says it’s not permanent, and to also take it with magnesium, which I have, to hopefully be able to wean off the drug. Fingers crossed this helps. I want to live again.