New thought about mav

I think I am going to call an Endroconologist on Monday morning. From information I’ve gathered, they study the thryroid glands, adrenal glands, hormone levels, etc. Dr. Hain told me my MAV was caused by hormones. I am 34 and I guess around 35 is when women go through hormonal changes. I asked him if I should get my hormones checked, the answer was no. But…what if I have more of a hormonal imbalance than normal? Mine could be doing more than just fluctuating. I looked up hormonal problems on the internet. It said women can start perimenopause as early as their mid thirties. The symptoms are: anxiety, depression, irritability, migraine, hot flashes, changes in menstrual cycle (lighter or heavier, shorter or longer duration),fatigue, the list goes on and on. The more I read, the more it sounded like my symptoms. Oprah even had a huge discussion on hormones last week. Women said they just didn’t feel right. They didn’t have a sense of well being until their hormones were back to being level. Do you guys think this is worth pursuing? Am I just grasping for a cure? I am desperate to feel better. Also, I am very Vitamin D deficient and it plays a role with hormones.

Desperately searching for answers,

  • Nance

Nance, I would agree that it is worth a shot. Many of the tests that an endocrinologist would do are easy blood tests. They could also act as a baseline for future reference. I, like so many others here I am sure, went through the gambit of Drs prior to my vestibular migraine diagnosis (cardiologist, endocrinologist, ENT, neurologist, ophthalmologist) and during that process it was confirmed that I have reactive hypoglycemia based on the endocrine tests. I think I would definitely pursue this. Good luck! Ben

Hi Nance,

This is the premise of the “migriane program”. They attempt to rebalance hormones using bioidentical hormone therapy. Whether or not it works is anyone’s guess. I haven’t been able to handle any of the supplements myself thus far. They want a lot of money to join so beware of that.

migraineprogram.com/

Scott 8)

Ben - Thanks. I think I will call an endocrinologist tomorrow. I’ll keep you updated.

Scott - Thanks for the warning about the bioidentical hormone therapy. I’ve been so tempted to order from some of the sites I’ve found. It sounds almost too good to be true. I’m hoping when I go to an endocrinologist that they will be able to offer me some insight into the “hormonal thing”. At least bloodwork will show how my levels are. I think some sites prey on desperate people like me by saying they have “THE CURE”. Thanks.

Hope you all are having better days. :stuck_out_tongue:

Sincerely,

Nance

I called a really good endocrinologist today. A nurse friend of mine recommended her. There are none in my immediate area. I have to travel about 45 minutes to see this one. Her next opening is in April! I guess I’ll have to wait it out. They said they would put me on a list in case of cancellations. There is hope I will get in sooner. I just thought I’d let you guys know.

Nance

Nance,

It’s too bad you have to wait so long. Hopefully, it is an indication she is really good. I can’t wait to hear what you find out. I have some of the same issues and questions you do.

Hang in there.

Marci

Nance,

You might be on to something there. My wife very recently went to see a hormone specialist and was told that having your hormones out of whack can cause all sorts of funky things. Just talking with the doctor, my wife said that she was a classic text book case of hormanol imbalance. So now, we, yes I said we, are waiting for the test results back. ’

If you think this may have anything to do with you symptoms then by all means, investigate this. I knew I investigated everything that looked plausible to me in order to get a proper diagnoses.

Brian

Brian,

Does your wife suffer from dizziness at all? I hope you don’t mind me asking but is she around my age? (34?) That is interesting. Since I feel all sorts of whacky symptoms, wouldn’t it be something if there was a cure regarding to hormones. I know that I am really stretching it in hopes of answers. How did they test her hormones, is it just through blood tests? Sorry for asking so many questions. Thank you for your support. I can always count on you for positive feedback.

  • Nance

Nance,

My wife does not experience any type of MAV issues, just classical migraine and all sorts of odd female problems. The reason that I brought it up that this might be a good direction was because of all the other issues my wife has that the doc says might be hormone related.

Brian

Brian,

I am glad you brought that up. I definitely think hormones are a huge factor for the reason I developed this now. I would rather have just had my usual clusters. The cluster migraines are horrible, the worst pain ever, but I know they always leave me for 9 months. Three months of daily pain is better than 10 months of dizziness that is daily. I think I did too much over the past couple of days. I felt a lot better, so I worked out, went shopping, cleaned house, did errands and now today…I feel crappy. Last night we went out to eat with friends. I started feeling dizzy/dips about an hour before we were supposed to go. I didn’t want to cancel last minute, so I pushed through it. It was complete hell. Nothing spun, but I felt dizzy and my eyes hurt. Then our friends came back to our house. I wanted to just go to bed. UGH!!! They finally left around 9 p.m. I told my husband that I think I over did it these past two days. He says no, you should be active like this, it is good for you. I agree, to an extent. I am soooooo glad he is working today, I need to rest. (as much as I can with a 3 year old running around) Sorry to get so far off topic. Thanks again, Brian.

  • Nance

Nance,

Your husband is partially correct, in the keeping yourself busy. You do need the activity and the excersize, but as a migrainer, in general you need to give yourself some down time just to let your body catch up.

My wife has pointed this out to me countless times. We will make plans to go somewhere such as vacation or a weekend trip and in the plans she actually has scheduled time in for me to just kick back. I’ll notice the extra time and point out that I think this is a little excessive, that we should be able to do it in less, and that is when she reminds me if we try to do it in the shorter amount of time that I will end up flat on the floor and half of our plans will be SOL. :lol:

Brian