Physician frustration

I’ve been dealing with chronic migraine and MAV since November of last year and have been seeing the same doctor for years. I really like her but she’s not very knowledgable on migraine - I dont think many GPs are. She’s sent me for the normal tests - EEG, MRI, etc. all of course are normal and referred me to a neurologist back then who started me on Elavil and then Topomax - both didnt work for me. I didnt like this neurologist either - very dismissive.

While I was on disability in Feb and March, I did lots of research and it was thru that that I went back to her every couple of weeks with new ideas and meds to try. She basically is just doing what I tell her to do - which in some aspects has its benefits. When I ask her what she thinks or if she knows of anything else to try she says no she doesnt and keeps prescribing meds. I even found another neurologist on my own who specializes in migraine and had her refer me - I see him on Aug 11.

I was doing not too bad for awhile, went back to work part-time but this past week and a half has been awful! Not sure if its the combination of bad weather (humid and hot one day, cool the next) and a bad monthly period or what but I feel like tearing my hair out. I went and saw her this morning and her solution is always to up my meds! I am SO sick of this being her answer to everything! There has to be something else! I have been experiencing horrible anxiety and tinnitus as prodome or aura right before the migraine hits - this has been daily! I feel like I’m going nuts! Right now I’m on 10 mg of Cipralex (been on it for 6 weeks) and 20 mg of nori (been on this for about 3 months).

Has anyone else experienced such frustration with their GPs? Part of me wants to switch but another part of me knows her M.O. and perhaps when I see the specialist he’ll be able to put me down the right path. A lot of GPs here arent taking new patients so that’s another problem.

I feel for you. When I went to my GP in April, she dismissed me as having allergies. She gave me nasonex to go home and try. My chief complaint was dizziness among other sypmtoms which all stemmed from several migraines I had. I suggested staring atleast a beta blocker until I saw neurologist, but she said no. She wasn’t comfortable putting me on anything until I saw him. Plus she ordered a battery of labs…1 which was for lyme. Mine came back neither positive or negative. She called me urgently making me feel like I had advanced lyme disease because she said there could be lesions on my brain and I needed to have an MRI asap! What craziness! All is fine in the end, but I suffered for a month with no meds, extreme dizziness and vertigo, until I finally saw my neuro.
Hang in there and maybe you will find that this next doctor will be skillful, and know what meds you can take to help your situation. I have been on Nadolol 40 mg for 3 mos, and Amitriptyline 20mg for about 2 mos now. I am finally beginning to feel human again!

In general, I’ve had better experience with my neurologist and my allergist who sees weird intractable conditions all the time. Both work “outside the box” very well. Tamsha - I supplement with Meclizine or Cyclizine both which are antihistamines for motion sickness but can help with dizziness or nausea (I don’t know where you live… I’m in the U.S. but get the best deals on the internet).
Hopefully you will strike up a good relationship with your neurologist in August.
Gail

— Begin quote from “Tamsha”

Has anyone else experienced such frustration with their GPs? Part of me wants to switch but another part of me knows her M.O. and perhaps when I see the specialist he’ll be able to put me down the right path. A lot of GPs here arent taking new patients so that’s another problem.

— End quote

Yep - my GP still asks me how my headaches are. Grrrrrrrrrr

My GP wont prescribe verapamil as says its not licenced for migraine. I had it years ago. He wont prescribe more than one drug at a time, so I cant mix two without doing it myself with the stuff I accumulate in the cabinet. He asks me questions like “how many headaches do you get a month” when I cant remember, he starts to get frustrated and says “come on, come on you must know”. How can I explain that it never really goes away. Oh, and the same neurologist for 10 years (and over 22 preventatives later) say no more :roll:

Christine