Kathryn,
So great to hear good news. wondering how you knew you had Mdds and not MAV. did you go on a boat prior?
Lisa
Hi Lisa,
Yes, I got MdDS from a 10-day cruise to New Zealand. I went from doctor to doctor (6 in total) who either thought I had an inner ear infection, or thought I was nuts.
Finally, a GP sent me to an ENT in Brisbane, and as soon as he heard the word ‘cruise’, knew what I had. I now have leaaflets from the MdDS foundation that I’ll pass out to the doctors who still don’t have a clue. The worst part of this disorder (one of them, anyhow) is that so few doctors have even heard of it.
Fortunately the ENT I went to knew.
Kathryn
I saw Prof Halmagyi, and then I went to see A/Prof Cremer (also in Sydney) who helped me a lot.
I have both migraine-associated vertigo and Meniere’s syndrome.
A/Prof Cremer was really understanding, and his treatment has helped my conditions.
He runs a specialist Vertigo Clinic in the north shore.
www.vertigoandneurology.com.au
I was very impressed with A/Prof Cremer, and I hope he can help you as well.
Good Luck, from Jeff 
— Begin quote from “jeff”
I saw Prof Halmagyi, and then I went to see A/Prof Cremer (also in Sydney) who helped me a lot.
I have both migraine-associated vertigo and Meniere’s syndrome.
A/Prof Cremer was really understanding, and his treatment has helped my conditions.
He runs a specialist Vertigo Clinic in the north shore.
vertigoandneurology.com.au
I was very impressed with A/Prof Cremer, and I hope he can help you as well.
Good Luck, from Jeff
— End quote
What treatment did he provide you with Jeff?
Hi Kathryn
Sorry to revive an old thread, but I was diagnosed by Professor Halmagyi back in November 2011 as having MdDS (after it first occurring back in Oct 2010) I had indeed been on a cruise before hand (July 2007, 2008 and 2010), but it appears it was a potential TIA or Vestibular Migirane or… (never diagnosed) driving home 1 night that triggered it off for me. (all arms/legs went weak/numb, slurred speech, face numb, chest pain etc - swore I was dying then and there).
It took a month before I could walk 500 metres to get to the bus stop so I could get back to work. Then try and cope with feeling as if I was in a washing machine while the bus took a corner or spinning out with sunlight between trees. I still can’t handle being in shops for long, originally 1 minute was my limit as it felt like I was walking through an earthquake with bright lights and that I’d collapse waiting at a checkout.
I wasn’t able to drive for over 2 years, and it’s still touch and go at times (i.e. I avoid all peak hour traffic, traffic jams as the busyness and lights/indicators throw me in to mass disorientation, dizziness, nausea and anxiety). Even yesterday I ended up calling for an ambulance after thinking I was having a heart attack - and it wasn’t even busy on the roads. So the feeling better while traveling in a car is actually worse for me than reducing symptoms - but I have to earn a living so keep trying.
I note that you mention there was an ENT specialist in Brisbane that was aware of MdDS? I wouldn’t mind getting the Doctors name so I can book in for a chat as I’m now at 3 years and it’s really getting to me. Symptoms seem to be worse once a fortnight on average, but have been on the rise again all week (leading to the ambulance call) and I’m at my wits’ end with it.
I tried literally dozens of meds from various doctors, nothing worked so not taking anything. Only thing ever seems to help take the edge off is Nurofen.
Cheers
Jeff.