Hello. I do not have MAV but I believe my mom has this condition. I am 99% convinced she has it - waiting for ENT and neurotolgy appt.
For those of you guys living with MAV - I understand this is a chronic condition and a lot of trial and error, but are you guys able to lead a relatively “normal” life? I would like to see her be able to drive again, go to the grocery store, and generally live a good life. For now she is so dizzy she is almost bed bound. She can move around some around the house but really not the best quality of life.
I think she is willing to try meds at this point. I know she has used amitriptyline in the past for regular migraine prevention (few years back she used it for like 3 months) but since then her symptoms have really warped/evolved to MAV.
I am trying to understand what she is going through and reading some of the stories out there my heart goes out to everyone suffering with this condition (i’m sure there are MANY people out there who is currently being ignored/misdiagnosed - as we were initially, before we took matter into our own hands) - but since I do not have MAV it is really hard to understand …