Hey everyone - so as you can see it was a similar time last year when I was relapsing and I appear to be very much here again! How frustrating. My eyes are only just able to let me write this update, I have a question to ask if anyone will be able to answer…
Is anyone currently on Amitriptyline and another drug? I’ve just upped my ami to 75mg on the 21st May and had some advice to maybe add in Effexor by a private neuro.
Any Ami combo info would be good, I’ve done a search on here and there are a few that I can’t tolerate. Feeling lousy and needing some hope
So sorry to hear you’ve relapsed again, it’s so frustrating. I’m just coming out the other side of a long relapse, triggered by Covid back in September. I’ve had my Amitriptyline dose doubled and I’m also taking Betahistine which has really helped the more vestibular symptoms. I’ve also been put on 400mg riboflavin a day and have increased my magnesium glycinate doseage from 400mg to 600mg. So far I am moving in the right direction. I do hope you can find a combination that works for you x
Thank you for your message, sorry to hear you’ve also had a rough ride too! I’m so glad you’re coming out the other side, what dose of Amitriptyline are you now on? I’m super sleepy on the higher dose. It is frustrating especially being so well on the 60mg for a good 6 months. thank you for your tips on supplements, I have all of those too. I think the magnesium makes me nausea worse somehow though. Currently can’t turn right as it makes me super dizzy. Ugh, hopefully it won’t be months like this! X
I’m only on 20mg Amitriptyline, I’m ridiculously sensitive to pretty much all medication and am having to increase it very slowly. 20mg wipes me out but I can definitely feel a difference so hopefully I won’t have to take too much more. Already feel like I rattle! Really feel for you, it really is no fun feeling like that xx
so I started on 20mg in 2019 and went up in 10mg increments, I got to 50mg and was doing well there for a while, I had A relapse lasting 6 weeks last March and the Neuro put me up to 60mg, then my dad passed away in September and my dog shortly after so there was a lot going on and I relapsed again at this time. Currently on 75mg but like you feel everytime I increase in pretty sensitive to it. Usually it does settle down though so don’t fret.
Also… it’s important to note that MAV is a condition and therefore has to be managed, there are going to be these awful times where we cant do anything and I think we have to accept that. Private Neuro told me that Acceptance therapy is a good place to start. It’s rubbish, it really is but we have this great forum and can help one another through the good and bad times xx
I could be wrong but I thought usually combinations of drugs aren’t prescribed from the same group type and I think Effexor and Ami are both anti depressants. Sorry, you are still suffering so badly.
Exactly what I thought too, according to Hains flowchart anyway, but this Neuro seemed to know her stuff and said they can be effective together with Effexor at a small dose so I don’t know Anyhow I’m willing to trial it and see how it goes, I’m just mindful of serotonin syndrome and the like.
Thank you for your well wishes too
thank you for your tips on supplements, I have all of those too. I think the magnesium makes me nausea worse somehow though. Currently can’t turn right as it makes me super dizzy. Ugh, hopefully it won’t be months like this! X
xx
Anyhow I’m willing to trial it and see how it goes, I’m just mindful of serotonin syndrome and the like.