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Renee's Diary

I got a new set of weights today. I felt bad for the girl filling in for my regular UPS driver. Hope she didn’t hurt herself. Anyway, I was feeling a lot better today. Only slight vertigo but thankfully no nausea so I’ve been able to eat proper meals.

Felt well enough to drive myself to a doc appointment today. Driving, although I felt a little uncomfortable, I did fine. Went and picked up a prescription, in a huge, brightly lit grocery store, no anxiety or vertigo there either. Came home and managed to cook dinner and clean up the entire kitchen.

What I noticed most was though, when I was putting together the rack for my weights, my dizziness and visual disturbance seemed to have subsided completely. Focusing on a task that’s not screen-related made me feel better. I know it took my mind off of my symptoms because I was busy, but even after I was finished, the effect lasted maybe 2-3 hours before I felt them a bit again. Although my back got sore from crouching over for so long thanks to not being able to find my socket wrench and had to use a regular one, I’ll take that over a swaying room any day.

I just thought I’d share a bit of a story of relief, even if it is temporary. It made me happy.

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Well done. Pleased you are identifying triggers (the screen). Good to keep occupied wherever possible with non activating activities. I trust the weights are smaller rather than larger because most specialist say to avoid undue exertion otherwise they could prove a trigger. It’s no coincidence we have such a high percentage of PTs and gym enthusiasts in our mist on here for sure.

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Good morning Renee!
Ps> I’m Renee’ too! :blush:
One of our members @Diana21 finds great relief with being a makeup artist. When she focuses her mind onto the details involved in her hobby, she finds her symptoms lessen.
Hope you have many more days like yesterday!

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Hi @Renee …the other Renee @Naejohn is right, focusing on something that requieres my whole attention on detail helps me a lot, my makeup skills have gotten better since my MAV became chronic only because now I’m doing more makeup looks than ever lol

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I can appreciate a makeup artist. Love makeup myself but not an artist. Just do my own makeup and some SFX makeup. Would love to see some of your work! I need to find more concentrated tasks. I wish my work wasn’t done strictly on the computer. I feel like I’d be better more often than not.

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@Naejohn Hello to a fellow Renee! I don’t run into too many. :slightly_smiling_face:

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100% agree with this quote. Like Helen says time and time again its like sustaining an industrial injury. Its tough
Jo x

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It sure is. Thankfully, today I managed to wear my contacts. I’m currently working as I type this and have my blue light-blocking glasses on to prevent any eye strain. I have a slight headache but I had gotten used to wearing my weaker eye glasses than my contacts. Even worked out, went out to the mall and Target to return things, stopped at Starbucks for tea and a sandwich, even managed to beautify myself with makeup.

I’m considering today a good day and I’m taking advantage of it but being careful not to overdo it.

There’s your answer to why contacts seem overstimulating. With your current brain hypersensitivity they are. It’s a stronger prescription. MAV brains hate change.

I’m trying to retrain my brain as it were. Maybe strengthen it somehow.

Been okay for 2 and a half days. I’m getting stressed and full of anxiety thanks to my brother being in town and not being the nicest person and therefore today, I am getting dizzy again. Not too happy. Can’t avoid him because he’s staying at my house. Sigh :pensive:

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So sorry to hear that. Stress (toxic people or situations) are probably my biggest trigger.

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I’ve calmed down a bit and feel a little better without having to take a med, but I don’t know how I’m going to put up with it up until Sunday.

EDIT: I find myself absorbing other people’s stress and I don’t know how to stop it because I can feel it.

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Having a not so good day. Started off fine. Figured yesterday’s light sensitivity was just another day. Nope. Full on attack. Dizziness isn’t so bad but it’s enough to make me nauseous and I have a headache this time to go with it. ENT said to stop the Antivert because it can make it worse. So now I’m stuck with nausea until it subsides.

I miss my old migraines. Yeah, they hurt and lasted 3 days but that was way better than all these other symptoms. I see my neurologist in two days, I hope I feel better by then otherwise I can’t make such a long trip.

Just got back from the neurologist, 5 hours later. It’s such a long trip. Told her about how my symptoms have evolved and are a constant waxing and waning rollercoaster of awful. She’s starting me on Amitriptyline, to be paired with my Sumatriptan. If I can have a few weeks or months of what I would consider freedom where I can actually go out into the world and feel comfortable, I’ll probably cry from relief.

Also, she says it’s not permanent, and to also take it with magnesium, which I have, to hopefully be able to wean off the drug. Fingers crossed this helps. I want to live again.

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Quick update. After two weeks of 10 mg of Amitriptyline, I was told to bump up to 20 mg a night. Got a slight hangover kind of feeling and a little irritable but I think I’m adjusting pretty well so far.

I’ve had some alcohol, yes, hard liquor, which I’ve not had in probably 4 years without much trouble at all. I’ve started doing headstands again for my yoga balance, without much trouble unless I roll over and kink my neck like an idiot.

Unfortunately, the drowsiness side effect has worn off. Too bad, because I liked just passing out in bed all nice like.

The lack of salt and chocolate in my diet seems to help, along with my usual vitamins and supplements. Since I’ve ceased using my protein powder, I don’t feel as woozy or off and if I do, it’s mild or at least short lived, for the time being anyway.

I won’t take this as a full on victory as it’s still early in my journey, but I’m feeling a lot more like myself. I’m actually considering dating again, holy crap, I know.

Just wanted to put some positivity out there for everyone here.

I’ve been doing pretty, well great actually. I’ve felt “normal” much like my old self to where I’ve gone out to hockey games, out drinking in loud places, just really good.

These past two days I’m getting a familiar feeling of not feeling like myself, slight visual disturbance and light sensitivity. Head feels a little heavy and had a low level headache yesterday. I’m chalking it up to hormonal changes and hopefully not my medication dosage no longer being as effective. We shall see. Be well everyone.

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Two days is a blip. Hardly a relapse at all. You forgot you have MAV. We all do it when we get a good run. Go back to self care. Mind your triggers. Pick your good MAV hygiene habits back up. You’ll weather it.

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Yeah, I had salty chips and I knew I’d regret it.

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Choices. :confused:

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