I am reposting this for Momof3:
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I am very comforted to have this forum. (Sorry in advance if I did not post this properly – am not at all computer literate).
My life changed dramatically this year February 6, 2007. I am 33 and was making my daughter’s bed when severe, black out quality vertigo struck me and I went thud to the floor. I had to ask my daughter to get me the phone (she was 5) so I could call 911. I thought I was having a stroke. I literally could not lift my head, as all I could feel was the world spinning. My vision was also fleeting and I felt I could ‘go’ at any time.
I was diagnosed as having an ‘inner ear infection’ at the ER and sent off with Gravol.
Well, this ‘infection’ did not go away! Six weeks later of feeling like a prisoner of my body, my ENT suggested MRI and ENG testing. MRI was normal, as was the ENG. I was, by default, diagnosed with ‘vestibular migraine’. I was told to take a calcium channel blocking med, but cannot as I am still nursing my youngest son.
I feel ‘off’ all of the time, sometimes it is ‘lie down in bed’ off, sometimes I can disguise it and pretend I am ‘normal’. I notice I am always holding my head or supporting my face in some way. I cannot focus on reading anymore, and find driving extremely challenging, due to my horrible concentration. I cannot socialize or have long evenings out, as the imbalance and fatigue is all encompassing. I went from a super fit, weight lifting, aerobic loving athlete to an absolute ‘couch potato’ by necessity. I literally ponder 'can I walk from the couch to my bed?" I cannot describe how horrid and life -quality robbing of a disorder this has been. I am afraid to go to stores anymore with my children in case I fall or pass out, am leery of attending events with my children (noise is horrid) and basically pray each day to make it through without anything truly horrible happening. I am always lightheaded, sometimes severely and scarily so.
I do get the ‘migraine headache’ which come and go, but the vertigo stays. Sometimes in bed I feel as though I am falling, spinning, or flipping end to end. Blessedly, I also feel still on occasion.
There is very little understanding by others and I suspect I am judged as someone either anxious and/or depressed. Mind you, I do feel anxious and depressed resulting from this craziness!
I am due to see my first real life neurologist in a few weeks (this is Canada and specialist waits are several months). I cannot wait to talk his ear off and beg for some relief!
Everyone out there – is there a ‘cure’ or a med which will control this? Or do I have to accept this as my ‘new normal’? Is the calcium channel blocking med the magic pill? It’ll be nice to hear something before I see this new Dr.
Thanks for listening and best wishes to everyone.
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