Secondary endolymphatic hydrops anyone?

I wonder how many more people have the “wind thing” when they bend over :lol:

Sorry, I did try hard to resist!

Christine

Good one, Christine!–my keyboard nearly got splattered with chai! :slight_smile:

The “wind” thing is really strange–I’ve never heard of anything like it. Clearly it’s position-related. If any of you find out, or at least get some kind of plausible speculation from your doctor, please post.

Nancy

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I also have the wind-thing. When I bend over. ANd if I lay in bed and raises my head in a certain way. What “these issues” did the neuro-oto reffer to?

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By these issues he meant people with vestibular problems. I started listening very carefully and realized that the wind noise is actually pulsatile tinnitus… Like I can hear my heartbeat in there. It almost sounds like when you are pregnant and you listen to an ultrasound of the baby’s heartbeat. That’s the best way for me to describe it. When I started looking up pulsatile tinnitus I found it being described as a “wind or gushing sound”. Will def bring this up to the neuro-oto during my february appointment. I have this along with regular ringing tinnitus.

Oh… and my ears started getting fullness in them yesterday :frowning: I notice it’s worse when I lie down. Really hoping I don’t have a PLF or hydrops after all but now I wonder…

Does ear fullness occur in MAV? First time I’ve ever experienced it outside of being on an airplane