I had a handful of migraines as a teenager then they stopped. Or so I thought. Fast forward into my mid-thirties and a brand spanking new version I didn’t know existed called vestibular migraine overtook my brain and life. Slowly regaining everything back. My symptoms are more migraine-dominant (nightly migraines) but I still have 24/7 dizziness and hyperacusis.
First acute balance issues:Started with eye symptoms - visual vertigo with computer screens
Number & duration of acute phase(s): 3 months of pure survival mode, chronic awfulness but more bearable stage is ongoing
Any suspicious physical event/trauma leading up to dizziness: history of concussion but none directly related
Start of chronic phase: Winter 2020
Age at chronic onset: 34
Started medication: I self-diagnosed about 2 weeks after having symptoms and started Propranolol 2 weeks later
Number & type of consultants seen to date: too many to count, most clueless. Confusing road trying to rule out other conditions and underlying causes. I’ve at this point decided it’s mostly crappy genetics.
Diagnoses received: Vestibular migraine, several others were proposed but MAV fits the best
Medications used successfully for MAV: propranolol sort of, Emgality TBD!
Failed medications for MAV: Nortriptyline
Non-pharmalogical treatment tried which helped: acupuncture for stress relief but not for the migraine symptoms. Cefaly helps some.
Non-pharmalogical treatment tried which didn’t seem to help: chiropractor neck adjustments!
Dietary triggers identified: vinegar, caffeine. Doing the full elimination diet for almost 2 months
Any hearing loss in either ear:nope
Persistent or intermittent tinnitus and character:persistent tinnitus including pulsatile
Other chronic conditions I’m suffering from: dry eye
Medication I’m taking for other conditions:none
Any personal history of migraines:yes
Any family history of migraines:NO!
Any history of ear problems:not really
How did friends, family, and doctors react to your symptoms?:bewildered but supportive