Still around, and trialing another drug

Hi All

Just wanted to let you know that I am still alive & kicking (have just been very busy but
have been reading all messages). I am also trialling a new drug - I have just taken my third dose
of Acetazolamide (Diamox). I feel markedly better, but it is a bit rough on my stomach (some diarrhea
and a bit of nausea). I’m pretty happy with the side effects so far though - I have not experienced
the tingling hands and feet that others often do, yet.

It seems to be moderately effective so far (on 62.5mg), so I will continue dose increases every week
until reaching my target of 500mg or when the dizziness and visual symptoms disappear.

If anyone wants to read about it, there is a lot of info around (search Google). It is commonly used for
rare forms of migraine and is very effective in those.



Really happy for you and thanks for the information. I am going to read about this. :slight_smile:
Is a neurologist prescribing it for you? Or some other specialist?



Glad to hear that you are having some success.

Just curious, how many different meds have you tried. From what I have read it is very common for people with MAV to go through multiple meds before they find one that works for them. Myself, I am on my third med, depakote, and have had quite a bit of success with it.

Hi Brian

I’ve trialled approximately 15 different meds before Acetazolamide!

Hi :o

I have read about Depakote being used for migraine treatment. I was curious if it helped.
And Adam : hope you are doing well on your new med. :slight_smile:

Let us know how it is going.