Sudden dramatic dizziness

Anyone else have a baseline dizziness punctuated by sudden intense dizzy turns? I have these fairly frequently (1 per week) whereby out of nowhere all my symptoms massivley intensify and I get super scared and in a panic…???

Also, does everyone here have fatigue, i would describe mine as absolutely bone crushing…I was on the train to London this morning and could have fallen asleep standing up!!

Fed up does not even come close, I WANT MY OLD LIFE BACK!!!

Hi,
I get what I call ‘attempted-mini-spin-attacks’ (analogous to the ‘zaps’ or ‘jolts’ I’ve heard other forum members call them). Not sure if this is what you mean, but they are very sudden and pass very quickly (1 - 10 secs or so). And yes, they instantly cause panic - heart racing, hot, etc.

I can also empathise with the fatigue - the Pizotifen especially seems to just ‘tranquilize’ me and completely knock me out, although I’m very gradually adjusting!
Best wishes,
Tony.

Thanks so much Tony…no it’s more an amplification in symptoms, they last about 30-40 mins, it’s so odd. can you make our London meet up in march?? Think it’s the 15th? xx

I do get periods of worse dizziness or like just now when my mum visited and sitting talking to her is really tough and I feel swirly headed and drowsy. I find sitting talking to people makes me feel worse and amplifies my symptoms. It helps just to stand up and move around whilst I am talking. I get random vertigo feelings too which last a few seconds but don’t turn into full room spinning.

I also get the fatigue. It was bone crushing at first and can be at times now but because I don’t do that much nowadays it is much less. When I was working it was awful xx

I know what you mean Jem, I find sitting talking to people tough too, esp if I do it for too long, I am just having a bad time at the mo, feeling absolutely fed up of all this, there is just no escape or respite from the feeling, it is horrible, I want my energy and life back so so much!! urgh, horrid. I am thinking of taking a break to rest and see if that helps…xx

I am glad you know what I mean about that talking to people thing Lizzie, I have never been sure that other people feel the same with this. Know how you feel about keeping going too. When I was working I felt like if I kept pushing myself for much longer I would die. I ran myself into the ground trying to keep on but in the end I had to stop. Definitely take time off if you can. I hope the propanolol helps you to improve more xx

Bone crushing fatigue yes… And I’m not on any meds.
Just part of the package.
Hope you find some relief soon.

Bone-crushing fatigue :frowning:

Soul-crushing fatigue that comes with a reflex action that makes you want to immediately punch any ‘muggle’ in the face who says to you “Oh, I’m so tired…” :smiley:

Jem. - breaks my heart I, too, feel like im dying just talking to people head spins so fast inside like its in a washing machine or swirly head like you said. So sorry u have this

Can relate to the talking to people. I get very drained and think its because I am watching them speak, hands, arms facial movements all cause me to feel dizzy. Sometimes I have to look away and tell them to keep talking and explain why I have difficulty ‘watching’ people speaking. I remember last year when I was at my very worst, a colleague came to see me who is highly excitable and her voice gets quicker and more high pitched as she talks. She also gesticulates with her hands and face. Well with all this going on she also came round in the most awful striped t shirt. I was so ill when she left!!!

As yes I get the fatigue, out of nowhere and I don’t describe it as a tiredness because I don’t want to sleep, its just like my body loses its life within seconds. Like I have been drugged. At the same time as the fatigue an instant depression comes on me and I feel unable to speak to anyone till it passes.

Oh MM totally get it :(. It’s fatigue like no other that “normals”
Will never ever understand

Oh Ang, and MM u guys are funny they way you describe things but joking aside it is bloody tough being this wrecked, god when I think I used to moan about having to go to work hungover or a bit lacking in sleep, jesus I had no idea!!! Stripey shirts are hell Ang, MM and I had a chat about this, offence patterned clothing, yuk.

Lisa, I am so so sorry you sound so tortured by this, it’s horrendous, I cannot wait to hear that you are re-gaining your health and your life again. I am really thinking of you and wishing u all the luck for your treatment, you deserve a new lease of life, and think how amazing it will be!!

jem, I have frequently said to my husband/mum/dad that if I died I wouldn’t be suprised, it makes you feel THAT bad, you wonder how your body can go on!!! I feel 80 years old and I’m only 31. I am so angry for all of us…still positivity is our only choice I guess. xx

By the way, I totally get the talking to people thing.

At the moment, I’m struggling to even string a coherent sentence together… Combination of Topirimate and migraine brain fog. I have no idea how much longer I can sit at my desk attempting to work. I am of no use to anyone.

I need to go to France and walk dogs. Why won’t the GP write that in her bloody letter.

Stripey shirts- Yesterday a commentator had one on. He says to me “Oh, I forgot, you are offended by my stripey shirts.”… He jokes, but he wouldn’t be laughing when I vomit over him :lol:

Maybe that’s the answer, just blow chuncks over the offensive shirt and he will be in nice neutral pastel colours before u know it!! LOL. xx

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Thanks so much Tony…no it’s more an amplification in symptoms, they last about 30-40 mins, it’s so odd. can you make our London meet up in march?? Think it’s the 15th? xx

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Hi - I’m really hoping to make the 15th - fingers crossed! :slight_smile:
I see what you mean now - I haven’t had them too badly lately, but I could always tell when some kind of ‘head activity’ or attack was happening, because I would feel it as a tightening and/or tingling, and the dizziness always got worse…
Really hope things improve for you!
Tony.

— Begin quote from "DizzieLizzie1"

Anyone else have a baseline dizziness punctuated by sudden intense dizzy turns? I have these fairly frequently (1 per week) whereby out of nowhere all my symptoms massivley intensify and I get super scared and in a panic…???

Also, does everyone here have fatigue, i would describe mine as absolutely bone crushing…I was on the train to London this morning and could have fallen asleep standing up!!

Fed up does not even come close, I WANT MY OLD LIFE BACK!!!

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Sorry to hear that Lizzie… can’t say I have had the same symptoms but I certainly know about the panic! How is your lyme diagnosis going? have you started treatment? or am I totally insane and have just made that up :smiley:

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— Begin quote from "DizzieLizzie1"

Thanks so much Tony…no it’s more an amplification in symptoms, they last about 30-40 mins, it’s so odd. can you make our London meet up in march?? Think it’s the 15th? xx

— End quote

Hi - I’m really hoping to make the 15th - fingers crossed! :slight_smile:
I see what you mean now - I haven’t had them too badly lately, but I could always tell when some kind of ‘head activity’ or attack was happening, because I would feel it as a tightening and/or tingling, and the dizziness always got worse…
Really hope things improve for you!
Tony.

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That would be awesome if you could make it mate! Hope to see you there

Lizzie -thanks for your kind words.

Thanks guys. Lisa, of course, you have been so kind to me too. I’m so hopeful for you…I see the UK Lyme specialist David Owen next Tuesday so I’ll be quizzing him about Igenex and the UK Health Protection Agency testing and all my symptoms and try to give a good report back here after the appt as I know this is a migraine forum but I’m going to get his opinion on the chronic dizziness and whether it is related in his opinion…read something the other day about how Lyme attacks nerves related to the vestibular system…we shall see. See all u Uk peeps on the 15th. xx