I really don’t think there is a lot I don’t know about this subject.
I’ve suffered for 15 years. The first 10 I was wrongly diagnosed despite paying to see a number of so called experts in their respective fields. I must have seen at least 10 experts and had numerous tests carried out. This excludes all of the alternatives I tried.
About 4 years ago I finally got the correct diagnosis but it turns out the so called experts referred to above treated it incorrectly. These include a psychiatrist, ENT consultant and vestibular rehabilitation expert.
I preserved with the various instructions given that interestingly didn’t differ from those given for the misdiagnosis.
About a year ago my symptoms/ sensation got out of control and started to takeover. For the first time ever I experienced anxiety like I never new existed.
On the back of feeling dreadful despite doing all I was instructed to do to the letter I decided to seek a second opinion.
I saw Dr Surenthian who I know a number of other members have seen. He confirmed the diagnosis without the need to do very expensive tests.
He confirmed that I was pretty much doing all of the correct things but at the wrong time, in the wrong way, taking the wrong medication and ignoring some obvious things. Basically I was wasting my time and he wasn’t surprised I felt so so ill suddenly. I had survived the last 15 years most of the time but each day I had the symptom of feeling fuzzy headed, flickery vision, stiff neck, tinnitus and often a feeling of dread.
So what’s the plan now. Diet - this has already showed good results I believe and was never mentioned to me in the last 4 years. I was eating los of things that don’t help the migraine. Rest - I have two young children so this kind of fits in but early to bed and a regular pattern of sleep. Physical exertion - I was running to try and make myself feel better. No more. Walking is fine. Meds - swapped meds as the ones I’d taken for the best part of 10 years do nothing for migraine. The new ones so far seem to be helping me. The anxiety has calmed significantly and I’m feeling more positive. Physio - completely the wrong time to be doing them until things have calmed. The so called experts had me doing them 10 times a day to the point where I guess I reached breaking point. I broke.
I’m the most optimistic I’ve been in years about the migraine and by recording matters daily in a diary I can see clear patterns. This tool should also help me when things aren’t running so smoothly.
I could keep on writing about my story but purposely want to keep it as brief as I can.
I’m happy to expand on any points I’ve made if I can.