Hi all. I am having a really difficult time, so hoping someone out there can relate.
On Monday of this week, I was driving to work and out of no where got depersonalization symptoms. It’s hard to explain - vision felt funny (maybe a little blurry, but not dizziness), slight numbness in limbs, just overall weird sensations hitting my body. About an hour or so later, the sinus pressure set in - behind my eyes, sides of my nose, sometimes I feel like it is on the back of my head, sometimes it bleeds down into my teeth. It causes a brain fog and sense of detachment, which then sends my anxiety through the roof.
I’ve been experiencing this with little to no relief for 3 days now. Sometimes at night everything subsides for a bit so that I can fall asleep, but then it comes right back in the morning. I’ve had other weird occurrences recently because I was on an antibiotic for UTI - for instance, woke up during the night with same numbing/surreal feelings and the same head pressure. So unsure if I might still be having side effects from that medication (I stopped it 4 weeks ago). I’ve also recently gotten off of birth control…hormones in my body are probably wacky at the moment, so maybe it has something to do with that, too.
To give a little history: In 2006 I experienced depersonalization for the first time and ended up at numerous doctors, un-diagnosed and just an absolute emotional wreck (which makes the depersonalization feelings worse). I had another major breakdown in 2010 when I got head pressure pain that I was told was related to jaw inflammation. In 2012, head pressure again sent me spiraling out of control - this time I got an MRI at the ER which again revealed nothing (that time I thought a chiropractor had done something awful to an artery or something). Again, the depersonalization feelings were present.
Needless to say, the fact that the head pressure and yucky disconnected feelings are back are really causing a lot of sadness for me. I am traveling for my brother’s wedding right now and trying so hard to make it through the days. When I get back home after the wedding, I have appointments with a holistic care doc, a therapist, and also trying to get in with another PCP who I’m hoping can refer me to some sort of neuro doc. As much as I want the symptoms to subside, I also want to be able to present with symptoms to a doc so that they can truly evaluate me properly (granted I find the right doc, which has been a huge challenge).
It appears that other people have had much more severe symptoms - has anyone had initial symptoms that are similar to mine? Again: sinus-like pressure, sometimes feels like it is behind eyes/in back of heads, feelings of detachment and some numbness-like sensations, vision feels shaky/sort of blurry, etc.
I hope to connect with others who’ve dealt with this. After doing some research, I feel like a vestibular migraine might be what I am experiencing and have experienced before.