I have been dithering for some time on whether to post this update as I am very scared about it not working and exposing me as a gullible ill person. However, I have now come to the conclusion that sharing this may be useful to some people whatever the outcome. So here goes: -
As some of you will know, in the past few months I have been exploring the possibility that my jaw is the cause (or at least a trigger) of my MAV. I have tried a couple of nightguards and splints, with some patchy success. At one point, a splint one dentist gave me actually made me feel worse! All this made me feel that my jaw was having some kind of effect on my symptoms.
Therefore, I then decided to go and see a neuromuscular dentist who specialises in TMJ a few hours from my home. Here is his website: jawcentre.co.uk. He was a really nice guy who was very honest that this is not mainstream dentistry and that he may be wrong about it but he is very passionate about it and I seem to be a textbook case (grating jaw, imprints of teeth on my tongue, head leans forward, poor posture, neck and back pain). He actually stopped his own migraines by following this route.
I decided to give his treatment plan a go before I finally give it up as a little voice keeps nagging me that I MAY be able to find a drug free alternative to getting better. If it doesn’t work, then fine, I know I have given it my best shot and I can concentrate on trying MORE medications. He did a number of tests on me and said that my top teeth are too far back, which is ‘fencing’ in my lower jaw, making it sit too far back. Also, my teeth are unsymmetrical as the left side is distorted. I had a orthodontic splint fitted 2 weeks ago which will move my front teeth forward and allow my lower jaw to sit in the correct position (very dramatic I know, it is reversible at this stage but I am a bit terrified).
I went to my Osteopath on Friday because the left side of my body was hurting so much (arm, shoulder, neck, back, hip and even my leg). She said that I am standing straight for the first time since she has known me; I normally lean to the right a lot (I wasn’t consciously aware that I leaned to the right). I wonder if this pain is due to my left side working more than it is used to? This pain is easing now, not sure if it’s due to the osteopath or my body getting used to be being upright.
The dentist told me that it would take a long time to get better - at least a few months. And that my recovery would be very up and down, not linear. In the past week, I have noticed some barely imperceptible changes in my symptoms. I am doing more activities; I don’t need to rest for three days if I go out for a couple of hours, I only need to rest for one. My head feels a bit clearer, I caught myself singing in the shower this morning as I had forgotten about being dizzy for a few minutes - this is very unusual for me since I’ve been ill! I don’t know what this means; whether it is psychological or if it’s just a temporary change but I’ll keep you posted if anyone is interested.