Topamax/ Prozac/ Midrin - still tired

Medication 💊 Anticonvulsants
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I have a new neurologist (my 3rd) and I’m finally not having the daily headaches (he prescribed me Medrol{steriods} for one week) and they actually worked. Amazing! After suffering like that for a year! My only problem now is still the fatigue. Midrin saved me a couple times (resue medicine) but not every time. I’m still very sensitive to light, sound, and smell. Someone suggested Vermapil that it may help me. I am just itred of being so tired.

I have two sons 3 & 4 and trying to keep them busy with school, swim lessons, play dates, and snooze times for mommy it’s not easy. Does anyone have any suggestions on how to increase my stamina without increasing my stress levels thus increasing my migraines. Honestly I am a type A personality and it is difficult for me too let things go. The house must be clean. The laundry must be done. The toys must be put away. I was just brought up that way and I have a difficult time letting go. Of course i married my opposite that had a mother who did everything for him.

I recently went to visit my niece for 4 days and had my mother-in-law take care of the boys while I was away meaning that they moved in with her while I was gone. He had no one to care for but himself and I thouroughly cleaned the house and did all the laundry before I left but did I come home to a peaceful house…guess?

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Jodizzy,

I can totally relate to your personality type. I’m the same way. Your subject line includes Topamax. I was on it for two months this spring/summer. It zapped what little energy I had left in me. I went off of it and felt like a new person. I’m not saying you should do the same. It helps some people. If you think it is helping your migraines, you should probably stick with it. Otherwise, you may want to talk to your doctor about trying something else. How long have you been taking Topamax? Do you think you are more fatigued since starting it? Has it helped your symptoms?

Verapamil helped me with vertigo, but not headaches. If your main problem is vertigo or dizziness, it may be worth a try.

I hope you find your Super Mom energy again soon! I know it is miserable to be without it.

Marci

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Hi Joedizzy,
I found having B12 injections every 6 weeks helped me have more energy. And my blood work wasn’t low to begin with.( within normal range)
20 minutes to sit in the early morning sun helped.
topamax hasn’t caused me any tiredness
Its my wonder drug.:smiley:
verapamil wasn’t that great for my migraines but helped a little with the motion intolerance.

I was like you unit I became to sick to keep it up,
Eventually I ran myself into the ground
It nearly killed me so I had to draw my self some boundaries.
There was no choice, so I picked out the stuff that annoyed me the most,
About being left and did the rest when I got around to it

I don’t iron any more unless we need the item, ect…
Washing day is once a week not twice, its saves on water too

I love neat things its just who I am, I cant stand untidiness or dirt
But my husband doesn’t mind untidiness.
if a cupboard is messy and i’m having a dizzy day, I close it back up and sit in the sun
If its messy and i’m having a good day, I’ll tidy it.
It’s simple once you realize how much more sanity is achieved by just letting go.
You could right it down like a schedule, that way, it will feel like your controlling what your doing, if that makes sence.
If you can’t re-teach yourself how to do this now, with migraine and a type a personality as you said you have then, you’re recovery of this illness is going to be harder to achieve.

Joe, do you have a good friend base with other mothers that could swap days with the sports days, like you take their kids one week and they take your kids the next. Or did you have to be there every time?

I’m lucky my daughter is all grown up and has left the nest
But this craziness started when she was only tiny.
I understand how hard it is to let go,
But if as your saying it’s starting to get on top of you.

Its time to evaluate what’s it’s achieving and who’s it making happy, are your kids happier with mum happier,
Or with the house clean and mum sick and crying?
Don’t be too hard on yourself Joedizzy; try to take some time out for you!
Your sick.
((((hugs)))) :smiley:
jen

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Thank you so much for your responses. The Topamax has helped tremendously. My neuro thinks he may actually cut back on the dosage a bit since my last neuro ramped me up so quickly (75mg to 150 in 2 months). I just want my energy back. I used to do triathlons and now I haven’t trained this year at all b/c of the movement and the sunlight. Sunset is best but the mosquitos! I walk but it’s not the same as running on the trails, smelling the water and fresh air. I even miss swimming in the lake trying to avoid beening ran over by a row boat. I don’t miss the geese though! People talk “you’re not the same”, “I want my old Joanne back”. What they don’t understand is that I DO TOO!

My husband is on the edge. He doesn’t know what to do b/c there is nothing he can do to help me. He gives me a hard time about eating b/c I find it harder to eat, I am pickier about what I eat, I look at all the ingredients, he doesn’t understand but tells me that he does his research on MAV but gives me a hard time about it anyway. We’re seeing a marriage counselor now. I only eat fruit, veggies, fish, chicken, hamburger (homemade), organic yogurt, cottaage cheese. Not much in the carb section. For some reason it makes me feel ill except a good french bread, definitely not sourdough.

Thanks for all your help. I’ll just play it day by day until my new neuro gats things in line. I start back at work tomorrow 8/11 part-time so we’ll see how that goes…

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— Begin quote from ____

People talk “you’re not the same”, “I want my old Joanne back”.

— End quote

— Begin quote from ____

My husband is on the edge. He doesn’t know what to do b/c there is nothing he can do to help me. He gives me a hard time about eating b/c I find it harder to eat, I am pickier about what I eat, I look at all the ingredients, he doesn’t understand but tells me that he does his research on MAV but gives me a hard time about it anyway.

— End quote

The empathy is never-ending :frowning: - i’m sure we all have our own versions of the same story.

i was talking last night to a very special member of this forum, wondering if our relationships will ever recover from the ravage of this MAV monster. sorry about the hyperbole.