(posting from a new account, because the “lost password” link isn’t sending me my password reset link @turnitaround?)
I’m on very similar meds, and have had the occipital nerve block recently, so can share my experience.
- 2x Botox rounds
- 1 occipital nerve block (about 3 weeks ago)
- Nurtec as an abortive
- 180mg daily Verapamil
- 75 mg of Venlafaxine (Effexor)
- Daily Cefaly device
I’ve also trialled Emgality (one month), Amitriptyline, Lexapro, Cymbalta, Propranalol.
I was chronic since Nov 2019, and feel like I’ve become more episodic in the past few months. I get maybe one flare up/week, but otherwise feel mostly normal, occasionally slightly wobbly, and occasional brain fog/tiredness. I credit Verapamil and Venlafaxine the most for reducing the disequilibrium, and the Botox/Occipital nerve block for reducing/removing the pain/pressure. It took me months to figure out the meds.
Emgality helped me for that month, but gave me pretty bad joint pain, so I went off it. Nurtec (only had maybe 5 tabs) helps with the flare ups, and gives me zero side effects. Amitriptyline gave me awful tinnitus, as did Lexapro and Cymbalta. Venlafaxine I tolerated the best.
I was in the same anxious state you were in at the start of all this. After a few months trialing meds, walking a lot, pushing myself (but not too hard) and seeing small but incremental improvements, my anxiety dropped off and more improvement came.
Unfortunately, this is a marathon, not a sprint. I think even if you get a CGRP and get on Verapamil, it’ll take a little while to kick in and help you along. Be patient, and kind to yourself.
Good luck! Let me know if you have any questions about the meds. Certainly I’m on Verapamil and taking Nurtec and haven’t had issues, but listen to your doctor.