Since sensitiity to visual input is so very common with MAV… How many of us can actually watch TV, and to what extent?
I’m extra interested if anyone has been utterly unable to watch anything, but has become able after treatment (with what med?), and at what point (i.e. how bad/limiting were the other symptoms at the time).
Personally, I haven’t been able to watch anything since more than a year now. It’s become slightly better, moving from 2 seconds = impossible to more than a minute or so = uggh. Lets just say that I’m not exactly happy with that, even though it’s some kind of progress.
Sure, getting your life back is important, but until I have that (and while I work on that), I would at LEAST like to be able to be at home without being ultra bored!
Hi Tran ,
My husband bought a big screen Tv , and that was the end of my sitting with him watching TV, before topa. It only took about 5 minutes before I faded into a migraine.
So I bought a tiny old tv for myself, its ok.
But if it’s a fast action movie that’s out of the question,
topas made a big difference with everything.
I now prefer to read.
For the most part I am OK with watching television. I did have some major problems at first, could watch anything with fast motion, rotating, or plunging. I still have to close my eyes with fast rotational, or plunging motion but it is not nearly as extreme as it once was. Now it is uncommon that I have close my eyes. Before I could hardly bare to watch at all. My vision problems regarding TV stabilized within a few months of when my symptoms started, several years before I got an MAV diagnoses. I do believe it was a do to when I started to change my diet.
I was thinking similarly to you. it doesn’t bother me one bit that i can’t watch TV, i hate it to begin with. I wouldn’t mind watching a movie once in awhile, but even that doesn’t bother me. I adore reading and i’m slowly but surely gaining that ability back which is very exciting for me.
For me, it’s HD tv that I CANNOT watch. Our old TV, no problem. But I absolutely cannot watch HD. I, of course have not started my meds, so who knows. And for those of you who wonder why I haven’t started meds, not that anyone is, it’s because my husband travels and I wanted him around to help with the kids in case my side effects were wacky,
At any rate, I want to by up all the old tvs that aren’t high def.
I’m about to start Topamax. I’m going to take a quarter first. I keep trying alternative treatment (acupuncture/cranial sacral) and hoping it will be the answer so that I don’t have to take drugs. But I cut the pill up tonight and am thinking of taking the plunge.
Yes, Molly, 1/4 of a pill shouldn’t be a problem. it was no sweat for me. I had an unusually great response at four days of 1/4 of a pill = NO DIZZINESS. unfortunately it came back within a few days, not all the way back, but it was a sign of things to come.
But having said that Scott did have a bad experience at 1/4 of a pill, but if you do, just stop, it will go away.
And Jen, had a strong good experience at 1/4 of a pill, so strong that she was glad she hadn’t gone any higher right away.
i told you, Jen is a unique and dear person and we are lucky to have her.