I got sick in november 2010, but didnt get the diagnose before october 2011. I tried the diet and lifestyle-thing. And had one failed Nori-try. And I am actually feeling worse than ever. It started getting worse this summer, and have just been going the wrong way. Is this normal? The doktor I see says that time mostly heales MAV, but that is not my case, I guess.
What are your experiences? Does your MAV get better or worse by time?
(Im trying the Nori again starting tonight)
Best from Line
My experience is that I would not be functioning today if it weren’t for the medications. Yes I think time helped my MAV lessen, but as soon as I hit another rough patch its the meds that help keep me going. I don’t care how great I feel, I would be extremely weary to quit taking the medications for fear that it would come back full blast. Nori might not be te drug for you, but you definitely should give some other drugs a try! For me, I can’t find any specific dietary triggers, and when I was feeling my best I was not sticking to any migraine diet. Soooo all in all I think the meds are much needed. Best of luck!
I have recently been diagnosed with Mav however i first started having the symptoms around 10 years ago. I didnt know what was wrong with me but felt really weird, dizzy, heavy head, etc had numerous tess, an mri scan etc and nothing showed up so doctors couldnt tell me what it was.Over the years i had the symptoms some days were better than others and there were days when i felt it was getting worse instead of better. Eventually after around 3 years i felt fine again. Over the years i had a few times where the symptoms would come back but only lasted a month or two then went away by themselves. For 7 months now the symptoms are back and are worse than ever before and i have now been diagnosed with Mav which is probably what i had all those years ago. For the last 3 weeks I have been on the diet and taking nortriptyline however still feel the same (prob too early for diet and meds to work). What i am trying to say is that i have got better myself without any diet/meds involved it just a very long time,
Hi Line,
In my own experience MAV will calm down by itself usually, but I know other people on here will report differently. I had several spells of MAV over the course of a few years, but it went away entirely within a week of each bout. However, I then got BPPV, and this seemed to send me into a chronic bout of MAV, which only went away after many months once I was on migraine preventative medication. However, it has pretty much stayed away, even though I stopped the medication ~6 months ago.
I was wondering if you could try a different drug to the nori? There are plenty of alternatives, although I am not sure what is available in your country.
By the way, I visited your beautiful country in 2007. Had a wonderful holiday in the Blavand region, staying in a lovely cottage along the coast.
It is limited wicth medicine they give here in Denmark. Ex. my dr.'s dont want to give me benzo.
I’m gonna try Nori again. Im not gonna try to let time do the trick. But I am a bit scared that it has been going worse over the last 6 month, instead of better… And was thinking if it was normal to go the wrong way 
Thanks for your answers…
beechleaf, where are you treated in Sweden? Is thinking about a sekund oppinion in Sweden or Germany.
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beechleaf, where are you treated in Sweden? Is thinking about a sekund oppinion in Sweden or Germany.
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I’m not in Sweden, so not sure how I have managed to give you that idea! :lol: I live in England.
I feel exactly like Jen wrote in the above ^^^^^ post…If it weren’t for my daily preventatives, I would not be functioning at all. I have been on these for about 4 years. I hate meds, never ever thought I would be taking this many pills per day to survive, but remembering from which I came 4 years ago, I am soooooooooo thankful to have these meds. I am able to function at about 90% everyday!
Pam
I hope it is true that Time really heals MAV. 
I was dizzy for 10 yrs before i realized i had MAV…the severity of my symptoms were up & down. much better after i started taking meds just last yr. I suggest you try different meds…but give each one a few months to work, even though the side effects are not pleasant.
good luck
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— Begin quote from “Line”
beechleaf, where are you treated in Sweden? Is thinking about a sekund oppinion in Sweden or Germany.
— End quote
I’m not in Sweden, so not sure how I have managed to give you that idea! :lol: I live in England.
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I dont know eather, I blame MAV :lol:
Thanks everyone. As I said, Im not giving up meds, but I was just thinking if I was the only one who got worse, instead of better, when every doctor says its going to go better and better
Best from Line
Hi - new to this forum. I started having bad symptoms after a Labs infection 16 years ago and until 2 years ago had been diagnosed with Menieres (repeatedly)and then -as my hearing had not deteriorated enough- with Endolymphatic hydrops. After the first few years my symptoms definetly improved with a few bad flare ups a year, although I was never totally symptom free. 2 years ago my symptoms started to flare up really badly again, so went back to ENT. This ENT was sure I have Mav and have had it all along.
So, yes symptoms can improve over time with no treatment (I only tried SERC early on for a few months with no effect). I have read of people being “cured” without treatment, but sadly not me.
Basically if ENT is right I have had untreated MAV for at least 16 years - about 3 really bad years at onset and then 10 "good"years with sporadic flare ups and now back to being quite bad again most of the time as I am about head into my 50’s ( could be hormone related, I suppose). I was told my symptoms had improved as my body had compensated somewhat to the dizziness, ear pressure etc - but not fully.
Thank you enidroach,
I was just very worried because it began to go the wrong way
Hope you will find your way to get better again.
Best from Line