Been a while since I have posted - hope some of the old faces are feeling better.
I’m doing quite well actually - I still feel dizzy but would say Im around 85% most of the time.
I started back on Pizotifen, which had a slight benefit (but weight gain!) and then added in 10mg of Citalopram which after a week made a real difference.
My job is going well and for the 1st time in ages I’m really enjoying life. I dont think I’ll ever be 100%, and I will always be dizzy, but at the moment it is manageable for once. Obvioulsy to be totally normal would be a dream, but you can’t have everything. Even now I feel fuzzy and am rocking - but Im so used to it!
So Happy to hear that you are doing better!! 85% is not bad! I would say I"m about at that same percentage, and I’d be lying if I said I wasnt still chasing the elusive 100% remission!!
THanks for sharing…
Kelley
Good to hear you’re doing well. I’ve had a bit of a relapse since flying 8 weeks ago - trying to crawl out of the hole now with a drug increase, seeing a bit of progress as of yesterday. Hey don’t give up on that 100% - could happen yet, this crap is so unpredictable.
Afraid I’m joining you on the drug induced weight gain front. I am half a stone heavier than I was which I hate, trying to do something about it at the moment.
Good to hear from you and hear that you’re doing so much better on Cipramil. I had a feeling that might be the key for you. Do you think you can dump pizotifen now? It doesn’t seem like it was doing much apart from making you eat like a race horse anyway.
Any side effects from Cip that are a bother? Mojo hit? The good news is that you’re getting good results at 10 mg so SEs should be low.
I’m wondering if adding B2, magnesium and Q10 would add another 5-10%?
Cheers … Scott
ps. I just booked a trip back to Toronto for July. Migraine or not, I’m going.
I am using B12 (sublingual), magnesium, Co-enzyme Q10 and Gingko Biloba for migraine. I think it is helping because my symptoms have been much better over the last couple of months. One of my doctors also suggested adding Omega 3 to my supplements as that helps with brain health. I will give it a try and see if there is anymore improvement.
Where in Toronto are you heading to Scott?? I live just outside of Toronto.
I am toying with dumping Pizotifen, but just scared that its the combo that is doing the trick. I guess I could always try and if I get worse get back on it again?!
How you doing? Citalopram hasnt really added any noteable side effects.
What dosage were you told to take for b12? I got some sublingual b12 from the store (5,000mcg pills was their max) as that’s easier than going to doctor’s for a shot though I’m open to it. I don’t have a depleted level of b12 I’m just trying to find something to help with the fatigue.