Just thought I pop in and say hi - so busy with work these days I often dont get a chance to post that much!
I’m hovering at about 80% - which is bearable but not ideal. I’ve definitely had the best six months in over 2 years, and can do most normal things, albeit feeling quite off and weird.
I’m still on 1.5mg of Pizotifen, recently reduced from 2mg because of weight gain. I have also recently upped my dose of Citalopram (Celexa) to 15mg, as this is when I started to see some real benefit.
My other conclusion is that I just have periods when this is better and worse, so no idea if meds working at all. I have a review in July so will see what they say, if anything!
I’m off to Thailand next week for a bit of R&R, hoping that a break will come things down in my hectic life.
Even while dizzy I have taken up rock climbing & running, although I generally feel very dizzy doing both! ha!
Good to hear from you and that you are doing much better. Great that you’re managing with work - I know how much of a worry that is. My guess is the drugs probably are helping. I also go through relapses and remissions, however after 8 years of this crap I’ve realised that the drugs almost certainly do help me. I tend to get worse if I lower the dose and get progressively better, although it can take a while when I up them.
Was in Thailand in Feb on Koh Phangan (sp?) Also spent a bit of time in Bangkok - all the trouble started there about two weeks after I left! Where are you headed?
I’m so glad to hear you are doing well! Do you notice any residual symptoms in the days following events that make you dizzy? If I over do it, I tend to be hurting BAD the three of four days following the event even though I make it through the initial event.