Good morning all,
I am new to this forum, so please forgive me if this question has already gone through the rounds. I have been reading many, many posts and thought I would give this a whirl and ask something that has been on my mind, but I cannot find answers through the web or through my doctors. So, okay, here it goes:
I am afraid to take prescription drugs for MAV. There…I said it…now here is why…
In the summer of 2009, I saw a neurologist whom I thought was going to help me figure this thing out. He saw I had a history of migraine and just went with that, regardless of the new symptoms I was experiencing, and he put me on Imitrex. My first dose and I ended up spending an evening in the ER via ambulance with what was the worst headache I had ever experienced in my life - I couldn’t open my eyes for hours, my head hurt so bad. I am not sure what they gave me that evening, but I was “out of it” for a week. Ok…so fast forward…
When I received my initial diagnosis (Nov 2011), I was given an Rx for Verapamil 5mg.I admitted to my doc that I was a non-compliant patient because of my experience with Imitrex and he replied, “So don’t take it.” and we continued with the supplements and diet modifications and did find relief…and, hey, I lost weight. But, upon a recent trip to Chicago (my hometown) I experienced an attack of vertigo while shopping on Michigan Avenue. I realized the components that lead up to that episode: lack of sleep, long car ride, barometric pressure change, humidity, stress from getting caught in a downpour, shopping under flourescent lights, hot inside the stores, hotel room on the 34th floor, un-timed meals, eating out (high sodium, high fat, etc.) - yep…set me right up. I realized that evening that I need to get this under control…diet and vitamins are not going to help me when an attack hits and I want to be able to travel and have a good time - this sucks.
Okay…so now you have the back story (sort of) let’s go back to my debate - I have read a lot about the success of Pizotifen 5mg (causes weight gain, which I do NOT need to do) and Verapamil 5mg (I have a script for this, but am afraid of the side effects). I think part of my problem goes back to the reaction I had to Imitrex. I am scared - I hate feeling bad and I do NOT want to end up in the hospital again. I am scared of spending another few years trying to figure out a prophylaxis that works for me, while feeling like (excuse me) shit in the meantime.
I don’t know what to do, but I know it is time to have a serious talk with not only my doc, but with myself…I want to feel better and I do NOT want to get sick in the middle of an awesome weekend ever again.
Any words of wisdom? Anyone know anything about either of these two drugs? I am literally making my self sick over the thought of taking the meds…