In response to your question about whether anyone feels increased motion in certain situations…absolutely…yes! It will be 2 years 26 March coming up that I suffered my ‘Big Crash’ and I haven’t as yet been able to get back to work. Having said that, the progress has been slow, but there has definitely been progress. I’ve been on Sandomigran (which I believe is an antihistamine) since visiting my neuro for approx 20 months now. I visited my neuro just last week and said I’ve reached the 60% improvement mark but can’t seem to get past it. He said it’s time to try other meds and has put me on a Beta-blocker called Metoprolol 50mg which I’m slowly increasing over the next 4 weeks to one tablet, twice daily. Can’t give much feedback about that one yet but like all of us forum participants, am hoping for big things.
Anyway, the main point is…when I visited my neuro last week, I said to him that my prevailing symptom now, was motion sickness. I get it after going driving, I floated on an airbed in our swimming pool and had motion sickness, and just in general I can get it from too much movement. I told the neuro I’m still living in a fish bowl watching the world pass me by because of the restrictions that motion sickness gives me. I’ve explained it to him like my brain is like a computer and can only copy with so much ‘processing’ and then after that, the feeling of motion sickness is what I’m left with. Too much conversation, too much concentration on any task, too much action in shopping malls, as you said too much stimuli which I equate to too much ‘processing’. I used to get nausea with all this, but it appears to have lifted over the past three months so I’m that much happier.
As I’m moving down the track of finding the most appropriate medication, I’ve still got in the back of my mind, the possibility of combining my meds that are most suited to me, with an anti-anxiety tab because as soon as I remove myself from places/people that cause too much ‘processing’, the motion sickness goes away. I’m positive that that will be included in my final meds combination, and I’m also sure that it will be a combination of meds, not just one, even if all low doses, that will get the condition under control.
Another interesting point raised at my neuro’s visit, was my need to have to get on a plane in October for my niece’s wedding (I’ve avoided a few opportunities so far!) and said that I’d heard that Valium might help and If I ‘bombed’ myself out for the trip, what did he think would be the effects, would it set me back as I’m not keen to go there again! He recommended that course of action and said that I could possibly feel a bit worse after the trip, but not for long and that he definitely did not feel that it would bring on another episode. Tickets are booked, I just need the willpower to do it!
Haven’t posted in a little while, but have been watching everyone’s progress, hi to Brian and Julie too!