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First–NOT ALONE…people are listening, and we do care. So does your husband, but he’s frustrated too. He wants to “fix it” but how? He is as frustrated and lost as you are in this, and he may have lashed out incorrectly, but don’t take it personally–he doesn’t mean it any more than you mean to get angry when there just isn’t anything left inside you but anger because you’ve cried yourself dry of tears. He wants to help you as much as you want to help yourself, but just as you’ve seemed to hit a wall–so has he, and when you don’t feel well, he is frustrated that he can’t help you while also frustrated that you aren’t up to par to help him.
Second–You THOUGHT you were over this because you’ve had GOOD days recently!!! That means that you haven’t been dizzy 24/7 lately, and that’s a GOOD THING!!! Today isn’t a good one, but were you dizzy yesterday? It is worse when you’ve felt better because when you feel bad, you realize how far from “good” you really are!!! But that you have good days is a HUGE STEP IN THE RIGHT DIRECTION!!!
I have had a tough couple of days too, and I think they’ve seemed worse to me than usual because I felt so good for almost two weeks prior to these three days. For a little while there I got really down about the fact that I was feeling so awful (in my case I got hit with horrible nausea and the follow-up headaches this time–it started Friday night with what I call a “balance slip” where it felt like someone pulled the ground out from under me while I was standing still–I haven’t been on kilter since). But I remembered too that I had felt like this nearly every day for 18 months STRAIGHT not too long ago. I feel bad right now, but I WILL FEEL BETTER AGAIN SOON–which I wasn’t sure I would ever be able to say again back in October before the meds started to actually seem to work a bit!!!
You are angry with your doctor that you can’t get an appointment–but I would bet money that your doctor has read your message and knows (not that it makes you feel better at the moment) that you will feel better when this particular episode runs its course. I don’t recall what meds you are on, but we all have to wait a few months for it to truly “sink in” to our system and make a lasting difference. I’m only 4 weeks in. I’ve been told it takes as much as 6 months on a maintenance dose of topamax for it to be its most effective!!! At 4 weeks I’ve noticed a huge difference, even though I’m not “cured.”
Let’s look to our future…how far into your “sort of working” meds at this point? What success have you seen so far? How many GOOD days have you had recently??? Tell me the good stuff that has happened lately!!
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Thank you! Its good to know that its not strange to have long vertigo. My last episode was when it first came and it lasted for 2 months. I got on nueronton and it helped a lot and now about 1.5 months later that humming and dizziness is back. They seem to correlated together. Once the humming starts i know in about a day or two the dizziness will start. Ok, so the good stuff is that I dont have that pressure in my head I use to and my brain is not as foggy. I am not as anxiety ridden as I use to be, but still there but not as bad. I did have a 1.5 months og good days, so that is a start. You are right, i know it will get better, bc all of you have gone through this. I really want to believe this is Labyerthis so that i can have that hope that it will go away some day. I know that i will not die of this so that is good. that was what gave me so much anxiety the last time. I need to except that this is my life now. This almost feels like Mieneres to me but my dizziness lasts for longer stretches than that. Thank you so much for replying to me, I needed to hear that it will get better and that you have gone through the same.