I wanted to share a link to a cse study of how dysfunction of the autonomic nervous system during migraine can cause palpitations, but we canāt add links in posts??
Anyway, there is also some great videos on YouTube by a cardiologist called sanjod gupta about ectopic beats - what causes them, why they feel like they do, and that they are harmless. He explains that ectopics are caused by the autonomic nervous system, so when it is affected by stimuli like caffeine or anxiety, it triggers ectopics. He doesnāt mention migraine but itās well known that migraines affect the autonomic nervous system which causes symptoms such as flushing, teary eyes, nausea, diarrhea etc. So it makes perfect sense that migraines can cause palpitations like ectopics. Those youtube videos also say that not everyone feels ectopics, they can see them on an ECG but not feel them in their chest, yet other people feel them. This is because some people have a more sensitive nervous system, caused by things like anxiety. During a migraine, our nervous system is hyper sensitive, which could be why some people feel palpitations. Basically - migraine causes palpitations because of its effect on the nervous system. Why on earth doctors donāt know this, or accept this, i donāt understandā¦
Thatās probably all to do with site security. You should find once youāve been a member of a while you get granted additional privileges which will mean you are able to add in links. @turnitaround is Forum Leader. Heāll explain. Helen
Sure you can add links to posts (youāve seen them all over the site, havenāt you?), but as @Onandon03 eludes to, this is sometimes contrained by your Trust Level (which increases as you spend time using the features of the site). However, I notice you are Trust Level 1 now and at that level you are allowed to post links. Did you get any kind of error? What did you do, just cut and paste the link into the editor? (āComposerā) That should work.
You really have been through the mill with this condition. If you donāt mind me asking, and I ask because our journey has many similarities, what were you diagnosed with initially. I was twelve years misdiagnosed as BPPV, and untreated myself and we are both in UK and Iām appalled at doctors lack of recognition of this condition. Although we cannot change the past itās so frustrating to think, despite what Iāve since read to the contrary, that had our condition been picked up sooner, it would have been easier to treat when episodic rather than chronic. Helen
I was misdiagnosed with eustachian tube dysfunction and congestion. Told it could take months to go and there was nothing could be done. I was told that repeatedly for years every time i had a flare up. Its never been episodic for me, but i was given decongestant sprays to take for 6 months, which are actually migraine triggers so that didnāt help. When i saw a different doctor she said to me āi wouldnāt have had you take that for more than a few weeks.ā she would have told me to return when my symptoms didnāt improve in a matter of weeks, not wait months on end. I felt like the gp I saw didnāt take me seriously and fobbed me off. The other gp didnāt know what was wrong with me but she sent me straight to an audiologist, and when i suggested it could be vestibular migraine (i had to tell her and she googled it) she sent me to a neurologist. She was very thorough examining me and asking how much it affected my life. Thr other gp barely bothered except to look in my ears. As far as he was concerned, ear pressure, dizziness and head pressure was congestion and i had to wait it out. They arenāt educated enough about migraines (they think they are just one sided head pain) and certainly donāt take dizziness seriously. I should have returned to the gp and insisted more, but i trusted he was correct and since i was repeatedly told on 5 different occasions over the years that it was congestion and nothing could be done, i gave up going to the gp because it was just wasting time.
I wonder if i had been diagnosed earlier, if i would have been treated easier. Or if the decongestants have contributed to me being stuck like this for so long.
Oh, different misdiagnosis but much the same as me. I was told BPPV āand āthereās nothing we can do about thatā, and I believed them and went away. If I ever mentioned it again the response would be do you need more Buccastem tablets, Run Out? Trouble is, untreated, I found it gradually just got worse and worse. I think it does that. Doubt decongestants caused that for you. Iād reckon just natural progression of the condition. The trouble gets doubly worse once it affects oneās ability to be active and then it tends to be a downward spiral because eventually psychological factors kick in. As you say doctors prove woefully inproficient with recognition of the condition which hinders any moves towards a solution. Helen
Gpd to know iām not the only pne. Mine come and go in varying patterns depending on my dizziness. Theyāre caused by your nervous system being sensitised because of mav.
No i donāt take it. I tried riboflavin but it upset my stomach so i havenāt wanted to try any other supplements. You can get a blood test to see if you have low magnesium.
I havenāt found a single thing thatās helped me yet.
Thatās more to find out if you are seriously deficient and may have a different serious health problem - not a good test for migraine. Put another way, you can still get some results even though you test ānormalā for magnesium. Pierangelo Geppetti, MD discusses this in day 5 of the migraine world summit.
I didnāt know that, i thought it was only beneficial if you were deficient. The recommended doses of vitamins for migraine is so high i donāt know how anyone tolerates them.