Yes itās all very complex and literally hard to get your head around! Question then I like say 3-4 cups of decaf tea but I am going to cut that out too as Iām aware they still contain caffeine. Any suggestions for any suitable warm drinks?
Well, you could check out the siteās Members Recommended Products where youāll find Tetleys Redbush tea which is caffeine free, and buying that would help fund this siteās maintenance. Iāve not seen it in shops but I donāt, courtesy of MAV, do much supermarket shopping so not the best person to know, but couple of weeks back I did find an Aldi own brand - Diplomat - that states, in big letters on box āCaffeine Freeā. Itās OK. Itās either that or try herbal teas. Helen
Ooh ok iāll Get the red bush then thanks!
1 Like
Havenāt tried those 2 supplements; I had issues with coq10, and I read that feverfew and butterbur are questionable.
Also, if I try to manipulate my ear at all physically while itās full, the fullness gets worse (there isnāt pain involved). For example, if it feels about half full or slightly full, if I try to pluck my ear with my finger then the fullness will go away for a quick second then get worse in fullness than what it was originally at. Iāve realized drinking water and a good amount of it helps ārelease the valveā or whatever it is. Wish there was a better way of understanding why it does that or why the water ātrickā works.
@Natty04
I can say if I get only 4 hours of sleep I wake up feeling off. I had visual vibration yesterday due to inadequate sleep. I need 7-8 hours of sleep or I wake up feeling crappy (slightly dizzy, visual vibration in the distance on objects). It feels like a distorted crappy dream.
Yeah thatās crap having limited sleep! I have a 6 mth old so up twice a night feeding! Yep Iāve had the vibration things! Few weeks ago my sons cot bars were vibrating! If only a cure was simple it would make a fortune to this crap! Do you feel detached? Like there is kind of an imaginary screen between you and everything else? @Space_Cadet
Dehydration is a popular migraine trigger. Possibly water helping with that.
1 Like
I definitely try to drink lots and lots at all waking hours. The only downside is then having to get up for the loo half way through the night!
1 Like
Yeah, youāre pushing your system with being up and the sporadic get ups (not that you can help it 
). MAV likes consistency of sleep. If I nap I feel it (feeling groggy, slightly dizzy) when I wake up for a good couple mins to hour or so.
I have the sense of something doesnāt feel right or totally aligned; I donāt know about a screen? A haze? More incoming rain for tomorrow and I had crappy offness today. My vision tonight in the dark was darker than dark even with a night light on. It took longer for my eyes to adapt eventually.
@GetBetter
I go through about roughly 2 and a quarter bottles a day that are 50 ozs each. I chug more when my ear fullness goes up.
Do you see a gradual uptrend of getting better ? Mine is glacial progress but still all over the map
Yeah the sleep deprivation really gets to me! Even before this if I napped in the day it has always made me feel groggy and out of sorts! Itās just a really weird feeling of being detached like in between a bad hangover and still being drunk! Just feels as if Iām looking through a lens. Thatās crap about the darkness. What percent would you say you were to recovery?
No @GetBetter itās better in the fact that everything is not vibrating but I feel as if pizotifen is making me worse! Feel more detached and dreamlike.
Hi. Iāll tell you this for nothing. MAV/VM feeds on Stress and lack iof sleep. With a young baby you will have problems with getting sufficient sleep in the foreseeable future however you can and must tackle the stress. You seem super anxious and super vigilant at present. Try to relax. MAVās horrid but it wonāt kill you. Try to sort a few of the things that are bothering you. Thatāll help immensely. Try to accept you have this condition and it isnāt going to go away any time soon. Itās messing up signals in your brain and will give you weird, maybe frightening symptoms but really they are quite harmless and have logical explanations. You may begin to feel alot better gradually starting quite soon. You need to hang in there and keep taking the pills if at all possible. That ādetached dream-likeā state is not uncommon with MAV. Iām sure @Amylouise has had it too. What makes you think itās the Pizotifen causing it, and not the sertraline. This morning Iāve searched Zoloft on the internet, and antidepressants generally and found that it can also be a side effect of antidepressants. Logical when you think about it. The antidepressants build up an emotional detachment which stops you worrying and getting depressed is the theory I guess. Perhaps you need to discuss this with your doctor, and see what they say. I am of course not sure of the integrity of this website, first time Iāve come across it but for the record 9 Things You Didnāt Know About Being on Antidepressants | Grazia is where I found this information. Donāt worry. Try and check it out. Helen
1 Like
@Natty04 I am sorry to hear about you losing your twins. That has got to be one of the more unfortunate experiences ever.
Have you looked into your homocysteine levels? Elevated homocysteine levels have been implicated in migraine and miscarriage. Some causes of high homocysteine is not enough methylated folate, which comes from a genetic mutation. I suspect I have that problem and am waiting on DNA tests, but. Currently for me taking methylated folate has been very good for my headaches and other symptoms
I think lots of preventatives can make you feel that way. Both Verapamil and Topirimate are making me feel like that, but Iām trying to accept that for the meantime and focus on the benefits: reduced headaches/dizziness.
1 Like
I have felt like this before either drug thou @ander454 it does say on the Walton site thou that migrane can cause deralisation
Thanks for your message! I have never had this testing. I lost the boys last April and was fine then! This all started a few weeks after a terrible virus when I was pregnant with my recent son in May of this year
Thanks Helen for all of this information! I will take a look! I must admit I am a bit of a control freak and as this is out of my control I suppose I struggle that itās not a quick fix.
Do you feel this is a symtoms of the meds or did you not have this sensation. Before I thought this was slowly easing off ? I know dr S told me this was common of migraine 
1 Like
Yeah, I think it may just be the migraine too. Hard to tell
Itās strange how, until we are taken ill, we all always believe we are in control, total control - of everything - but we arenāt, never really have been. Itās another illusion. We cannot control the weather, our health or the affect it has on us. It comes as a bit of a shock. Iāve heard people say āI hadnāt planned on having a long-term illnessā. Who has. Helen
4 Likes