Yes. you would know - it looks like everything is jumping around or back and forth, very quickly. Strange sensation. I don’t have that anymore either. I guess my brain is starting to settle down.
When I first developed this condition two and a half years ago I had very distinct nystagmus when I’d have an episode of vertigo. I could actually feel my eyes flicking back and forth rapidly in my eye sockets. Interestingly as this condition has progressed, the vertigo I experience has gone from the appearance of rapid spinning to the appearance of objects rotating very slowly in my visual field. I can also now generally remain on my feet during one of these episodes, while in the beginning this would not have been possible. Likewise I am no longer aware of the nystagmus during these events. I was actually “lucky” enough to have one of these episodes while I was being examined by a physican’s assistant at John’s Hopkins this past Fall. She watched my eyes very closely and said there is a slow phase “torsional” nystagma that is a occurring, but she had to look hard to see it, so it must be pretty subtle.
So I would agree that if you ever have acute nystamus occur you will definitely know it. However, it is possible to have milder slow phase nystagmus and not be aware of it.
I agree with the comment about the brain adjusting to this. I think thats whats happenning in my case. In the beginning when my brain would receive disparite signals that it couldn’t make sense of it would just go into “tilt” mode and I’d have violent vertigo with acute nystagmus. Now my brain has learned that it can make some sense out of this mess, so it hangs in there and tries to get stuff worked out and I get more “benign” vertigo (if thats not an oxy moron).
Anyway thats my theory for what its worth.
Chuck
— Begin quote from “Chaz”
So I would agree that if you ever have acute nystamus occur you will definitely know it. However, it is possible to have milder slow phase nystagmus and not be aware of it.
Chuck
— End quote
I was not aware of milder nystagmus, so it makes sense that this would be harder to notice.