i just now wrote a post about how just a month ago i was suicidal and now that i am feeling better i am super happy wanting to live life to the fullest. mav or what ever the hell is wrong with me has taught me that life is short and stupid little fights or things that i complain about are stupid and a waste of living. i have been making amends with people i had fights with. i am trying to not get upset about little stuff like annoying people, or kids not listening. none of it matter. just this life with the people we love. you never know when things can get seriously screwed up so enjoy the good now.
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Hey Notchoma,
I’m glad you’re feeling better. I went through an extremely dark period during this…that also led to suicidal thoughts. I feel like MAV has been my dark night of the soul. But, things are getting better now. And, I have a different perspective on life now. MAV makes you realize what’s important in life. I hope you get to 100%.
i just now wrote a post about how just a month ago i was suicidal and now that i am feeling better i am super happy wanting to live life to the fullest. mav or what ever the hell is wrong with me has taught me that life is short and stupid little fights or things that i complain about are stupid and a waste of living. i have been making amends with people i had fights with. i am trying to not get upset about little stuff like annoying people, or kids not listening. none of it matter. just this life with the people we love. you never know when things can get seriously screwed up so enjoy the good now.
— End quote
Hey Notchoma,
I’m glad you’re feeling better. I went through an extremely dark period during this…that also led to suicidal thoughts. I feel like MAV has been my dark night of the soul. But, things are getting better now. And, I have a different perspective on life now. MAV makes you realize what’s important in life. I hope you get to 100%.
— End quote
Hi Joe, i totally agree. my mind went to places i dont ever want to see again. I cant believe how miserable i was. everything seems so much better now. I had this horrible vibration hum in my head 24/7 and i just could not take it. i just realize how precious every moment is now and to be honest, i am glad this happened to me. I am a much better person that i use to be. i just didnt understand suffering. my heart is softer and more open now. i just hope i can help someone who went through this like me. i feel like i need to help others now.
I prayed that God would end the terrible way I felt 24/7 and I tried making a deal with him that if he would help me I would do my very best to be friendlier, and go out of my way to be kind to those less fortunate and do my best to help those with disabilities whenever possible. well, I feel much better and I am living up to my end of the bargain, and doing these good things just makes me feel that much better…I believe I have created a true win-win for life!!
I hated MAV for 4 years, but maybe I am now a better person?
This thread has gotten sort of out of control but this is for Shell- I have fibro too and several of the mav meds can also treat chronic pain- for example, nortriptyline, amitriptyline, effexor, cymbalta, gabapentin, lyrica, topamax, etc.- are you currently on anything for the fibro?
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Thanks sarahd, I almost didn’t see that post! Yeah I am aware of those. I tried cymbalta several years ago and it didnt go well. Today the GP gave me an “emergency kit” for me to carry in case of an attack–(Ativan, Zofran and meclizene) so I do feel like I have a safety net if I have an attack of some kind, I dont feel defenseless. We discussed antidepressants but didn’t decide on one as of yet. I did mention ami and nortrip to her but she made a face and talked about the side effects. Well, to me the side effects of the SSRIs are too much better! I will wait and see how my anxiety level does after this week, She’s going to try to find me a neurotologist somewhere that we can travel to. Thank you for trying to help me! Alls I take for fibro is my ambien for sleep and I take occasional flexeril if I’m flaring. Thanks for asking, sharahd!
Peace,
Shell
I prayed that God would end the terrible way I felt 24/7 and I tried making a deal with him that if he would help me I would do my very best to be friendlier, and go out of my way to be kind to those less fortunate and do my best to help those with disabilities whenever possible. well, I feel much better and I am living up to my end of the bargain, and doing these good things just makes me feel that much better…I believe I have created a true win-win for life!!
I hated MAV for 4 years, but maybe I am now a better person?
— End quote
Good for you Jaybird! I must say, I’ve prayed HARD for him to take it away from me (and so have many others had me on prayer chains)…apparently it’s not going anywhere, so now my prayer is since it’s chronic, I pray for it to be mild. and I TOO told Him I’d help others and try to encourage them in their journey. Go Jaybird, keep that end of the deal. I hope to be where you are someday soon. God Bless Shell
im never going to worry that i look dorky in glasses because contacts are so uncomfortable and i cant stand wearing them but oh no i look less attractive lol. ahhhh, the good old days…
But also to appreciate the little things in life like a beautiful day, or a laugh with my children I wish ‘normal’ people knew how lucky they are, i would rather never be dizzy again than win the lottery.
I’m bumping this topic I thought this would be good to get more responses on.
Having this awkward scary migraine issue/disease has taught me to value friendships more, relax, enjoy life and the people around me that really care. It’s taught me to be healthy, it’s taught me that my body reacts to everything we do, good and bad. It’s taught me to take care of myself and to reach out to people and really value those that are sincere and honest. It’s taught me to not care about insignificant things or people and that things could always be worse. I know some of you are in this dark tunnel and this scary place and I honestly hope you all find the answer to one day reach the other side. I know it’s scary as hell when you’re not in control of your own head. I wish and pray that we all find peace with this.
I’ve learned not to mention my illness to anyone who isn’t extremely close. It’s too easy for people to label someone with an invisible illness as psyco-somatic or crazy. I’ve also learned not to show emotion (crying, appearing anxious) during a doctor’s appointment. Again, it’s too easy for them to say anxiety or stress must be the root cause.
Finally, as others have said, I no longer worry about little things that will probably never happen. What a waste of energy.
I have learnt to try live each day to the fullest, even the bad days. I have learnt to work towards healing: mind, body and soul. This has been a journey I probably would have passed if given the option; but have definitely learnt a lot about myself, my husband, family and friends since it all started.
MAV has taught me to be more assertive. I realised how judgemental and unhelpful other people could be, it made me see the dark side of other people and how I never want to hae to rely on anybody else for help. I tend to care less what other people think of me now. It has made me come out of my shell as I was quite shy before and now I don’t give a stuff what people think of me. I’m a lot louder and not afraid to challenge people although I’m still pretty easy going. Like a lot of others have said it has helped me to sympathise with others who have illness that is not immediately apparent. I work as a paeds nurse and it has helped me help a lot of kids with migraine who where being given the wrong advice by “doctors”. I saw one doctor tell a 14 year old that he had to just learn to “deal with it” even though the doctor hadn’t had him seen by a neurologist or anything, so I waited till she left and told them to get referred to a headache specialist.
Shell
I thought this would be good to get more responses on.