Hey, thanks a lot for sharing…From now, i know what migraine is all about…
Good to hear. There is still a truck load of nonsense on the web. Just today I was dispelling the myth that this is a curable condition on Facebook. It went down like a lead balloon for a particular woman but no point sugar-coating this crap. The first thing one needs to do is understand this beast in full and then put a chain on it to rein it in.
S
greetings,
first, thank you for this whole thing here. i was told about the forum from a client/friend who suffers from Meniere’s on a day that i woke with my usual migraine/vomit stint. i visited 2 separate ERs about a month ago, one of which being the Lahey clinic in MA. i was on day 18 of migraine/headache complete with vertigo, which was relatively new as a symptom in congruence with migraine for me. i had NO idea this was a disease, that vertigo was a common symptom and that i’m not a whack job who gets headaches more than anyone else i know. i figured that it’s hereditary–i have a few cousins that get them often as well. other than that…i’m clueless and so are the doctors that i have been seeing. one neurologist doc told me every headache i get was migraine, then 3 months later he said the complete opposite. i was told it was because of my high blood pressure. another told me to start seeing my shrink again. get acupuncture. massage. drink water. drink more water. so far, all that has done is make me use the girl’s room more. during the 2 weeks that i was down and out with migraine and vertigo, i also had bizarro symptoms to include confusion, word searching, short-term memory loss and poor concentration and sleep. when i presented all these symptoms to both sets of ER (Exeter NH, then Lahey Clinic) docs, as well as my primary and 3rd neurologist, i got blank stares. as in no questions, certainly no hint of diagnosis, or any reason why i had these symptoms. my primary simply told me to follow up with the neurologist. then she told me to grow up when i declined a flu shot.
currently, i’m on a regimen of propranolol, and hctz for bp. i’ve been told to stop taking imitrex and fioricet as they can cause rebounds since i was taking them virtually every day. i don’t understand what that means, but it sucks because they were helping–not all of the time, but at least some of the time. i currently take 2 aleve and 2 aspirin when one hits and hope for the best. it rarely helps.
i will be reading up as much as time allows me here. i appreciate this site and those that offer their words of advice/wisdom as i am in dire need of help with this. beyond my health, i can’t afford to miss any more work because of my headaches!!
thanks again,
gina*
Thank you Scott for your summary on MAV. I have been suffering from headache / migraines for most of of my life. 4 year ago I woke up with a block ear and was diagnosed with sudden hearing lost. 2 years after that I was diagnose with Meniere’s disease. But since June of this year I have been dizzy every day. I have seen a ear doctor and he put me on a machine that duplicates the Ely maneuver two times. But no help there. This October I went to Tufts Dental school in Boston and was fitted for a nightguard but still wake up with headache. But just recently I have a constant feeling of lightheadedness and my whole body feels surreal as if it is not a part of me. Plus the pressure in my left ear is worst than ever. My PCP and Neurologist think I have an emotional problem. I was on nortryptiline for a month all that did was make my mind foggy. I have seen a neurologist at Dartmouth Hitchcock hospital in Lebanon, NH. He gave me high dosages of Naproxin Sodium but no help there either. I have seen many ENT and the prescription is meclizine which makes me dizzier when I take it even at half the doasage . All the traditional vertigo medications aren’t taking the dizziness away.
Maybe at Mass Eye and Ear they can start treating me for Migraine induce vertigo. I have an appointment on Friday Feb 8, 2013. I have great hope that I might be finally heading in the right direction.
If anyone out there is reading this post. I would appreciate any advice on medications or procedures that have help with MAV.
Hi DDGallant,
That is great you are going to mass eye and ear- that is where I go- what dr. are you seeing? do you have any trouble with your balance or walking?
I am seeing Dr. Rauch. I have seen him three times before but wasn’t dizzy then. I hope he can help me. Have you gotten any help with your dizziness from them. And if yes what is working?