What other health problems do you have

I am curious what other health problems that you all suffer from besides just Mav, as it seems that many Mav sufferers are much more susceptible to other health issues.

And I wonder what the lengths may be between the Mav and having other health issues as there seems like there could be some clues as to looking at the big picture of our health in addition to this one disease.

One of the things that has been very frustrating to me is when I have a symptom they send me to another specialist which knows nothing of my previous history and it is like starting over again and they never look as if they could be related and or in some way length-ed.

What do you all think and what are your other health issues besides just the MAV?

Timeless, I will start it off…I have reactive hypoglycemia, which has been much worse since my MAV crash over a year ago and seems to also be botrhered by my med trials. My sinuses in my forehead are also clogged up a bit although I do not have many symptoms of a sinus issue other than a few headaches now and then - it showed up on one of my scans they did. I also have somehting called anismis - akin to irritable bowel syndrome. Finally, I have an arachnoid cyst on my brain, which again was an incidental finding on an MRI and I am told it has nothing to do with what is currently going on…I am convcined for now but I still do wonder about this one, especially when my med trials fail! I am a fairly intense person and stress is likely what pushed me over the edge. I hope that we can all get back and soon! Ben

I have heart palpitations and Polycystic Ovarian Syndrome. My PCOS is being treated with Metformin (which is a diabetic drug) although my lab work always shows my blood sugar level is fine. It’s interesting because I see others on this board have blood sugar problems. I feel like I have hormonal issues that no doctor has been able to figure out so far. They just want to treat the symptoms…migraines, MAV, PCOS and palpitations.

Let me start this by saying that these things didn’t stop me from doing anything before this damn vertigo hit hard I didn’t even know I had them for the most part but I’ve seen that almost any one can cause vertigo. 1) TMJ, got the bite plate, hasn’t helped 2) eustachian tube dysfunction which goes ballistic when I have a weather headache 3)vestibular hypofunction of the left ear, the ENT says it’s minor and my neck is the problem 4)c5 c6 disc rupture, c6 c7 disc herniation, minor arthritis c2, my spine doesn’t really hurt though but my neck and shoulder muscles are incredibly tight with knots which does get irritating, I’m doing stretching exercises to help loosen them up but they say that’s not the problem either. Last but not least is my nerves which I think is totally related to the vertigo, but maybe not thay say I’m sitting on a nerve so who knows.

It makes me sad to hear any of us have other health issues!! This vertigo is devastating enough. I am praying for all us!

chronic pain in my arms, much like mousearms only more severe. It stopped my musicians carreer but slowly fades away when I obstain from computers and guitars for a couple of months. THen I have to watch it or it will come back, which it has now ;/

Used to be a singer but that too went down the drain 2 years ago; still don’t know whats wrong about my vocalcords as its just always a bit irritated in my throat (which the docs see too, so nothing “psychological” being suggested about this one at least hehe); might be reflux but still no improvment from 1 month ppi trial. I think it’s related to my nose not moisturising the air enough or allergies, but will have that tested eventually I guess…

Last by not least I have had gastritis since christmas. The ppi is helping so I hope to get rid of it FINALLY.

Interesting about that is that I am taking the same med that put me into crazy vertigo last year; pantoprazole. I have not had one single sideeffect on twice the dose I took back then…

I hate going to doctors. Hate being in the patient position.

What is ppi?

Hey Timeless –- for me, the only other problem is IBS which came to life just 2 years ago (4 years into this). I KNOW it’s related to the MAV. I’ve watched how I’ve triggered a headache/neck tension episode followed by my bowel going off 30 minues later. Another unrelated problem is plantar fascitis on the right foot which was kicked off on about day 3 of an Effexor trial months ago. I really have to see a physio about this. :roll:

Scott

ps. a PPI stands for “proton pump inhibitor”. They are used to contol acid production in the stomach and thus stop refulx.

— Begin quote from “scott”

Hey Timeless –- for me, the only other problem is IBS which came to life just 2 years ago (4 years into this). I KNOW it’s related to the MAV. I’ve watched how I’ve triggered a headache/neck tension episode followed by my bowel going off 30 minues later. Another unrelated problem is plantar fascitis on the right foot which was kicked off on about day 3 of an Effexor trial months ago. I really have to see a physio about this. :roll:

Scott

ps. a PPI stands for “proton pump inhibitor”. They are used to contol acid production in the stomach and thus stop refulx.

— End quote

If I may ask Scott when you get the IBS how does it react. My stomach has been giving me problems now for months and I have to go have a GI study done plus I am wondering if I do not need a colonostomy to rule out other things. I am normal lend more to being constipated but as of late it has been the exact opposite …

Plus on the other symptom you talked about I woke up this morning after a terrible day yesterday with an awful pain on the bottom of my right heel. It is a bit red on the bottom and is very sore, I do not remember stepping on anything but it was that way when I woke up and it was very hard and hurt to put any weight on it.

In addition to all of this I have GERD and have for years and just this week I have started feeling like I have something stuck in my throat…not sure what is up with that. Very unsettling.

Neck issues which seemed to have improved somewhat…

I have joint aches, muscle spasms,tinnitus , ear fullness, pulsating in the ear, all of which I have almost gotten used to at this point.

I am also having a lot of hormone changes which keeps everything out of whack.

Plus I have anxiety which did not start until last year when all of this hit rock bottom.

What a wonderful life we all have…it is never boring that is for sure. Although i would vote for boring at least most of the time…

Hey Timeless,

Good question. I have Interstitial Cystitis which is an Imflammed Bladder condition. I also have tightness and pain in my neck and shoulders. Currently getting physical therapy for that. My sinus’s tend to stuffy when i sleep at night…that has been going on since i injured my nose many years ago. I don’t know if it was due to the injury or something else??

Joe

Hi Timeless,

You might want to check out this thread too posted in May on this topic:

“Other Illnesses”

http://mvertigo.cloudapp.net/t/other-illnesses/1121

Yep that was mine.

B12 deficiency, autoimmune thyroid, litchensclerosis (auto immune again), they said I had menieres, then not (menieres can be autoimmune), tinnitus, vertigo, neckpain, muscles aches, strong virusy feelings after exertion (diagnosed with CFS now) as they dont know whats causing it all. Bad insomnia, restless leg syndrome.

At the moment looking at ther research on ME, which is implicating viruses accumulating in the cells and the immune system being clobbered too hard and cant deal with them. They are finding a lot to do with viruses staying in the gut (hence all the gut problems). Basically overload of bacterial or viruses in the cells not being cleared by immune system.

With me, anyway, I am suspecting there is a lot more to this than just migraine.

Christine

— Begin quote from “cmoc”

Yep that was mine.

B12 deficiency, autoimmune thyroid, litchensclerosis (auto immune again), they said I had menieres, then not (menieres can be autoimmune), tinnitus, vertigo, neckpain, muscles aches, strong virusy feelings after exertion (diagnosed with CFS now) as they dont know whats causing it all. Bad insomnia, restless leg syndrome.

At the moment looking at ther research on ME, which is implicating viruses accumulating in the cells and the immune system being clobbered too hard and cant deal with them. They are finding a lot to do with viruses staying in the gut (hence all the gut problems). Basically overload of bacterial or viruses in the cells not being cleared by immune system.

With me, anyway, I am suspecting there is a lot more to this than just migraine.

Christine

— End quote

I am thinking the same thing Christine …that though I have this that there are other issues than just this at hand. What type of gut problems do you have I know something is very wrong with mine and I do not know where to turn next.

I have a vibrating sensation there at night and many times during the day plus my bowels are just all over the place with burning sensations on the outside that also cause pain from time to time. I am unable to eat much at all without really upsetting it…I am loosing weight and I cannot continue to loose it at this rate.

My stomach hasnt been right going back 30 years, but a lot better now that it was. Top stomach pains centre and around ribs, windy pain there and low abdominal pain (used to have abdominal migraine as a child). IBS on and off, I can control this most of the time now. I have had pelvic infections due to a bodged IVF, NHS bodged endometrial scrape infected fallopian tubes, other stuff too. Wind pain etc.

What helps, Betaine Hydrochloride with meals especially before bed. Digestive enzymes with meals (when bad). Linseeds to keep the bowels moving. Keeping carb down throughout the day (eat it in the evening to raise the serotonin to help sleep). Recognizing the beginning of an irritable bowel episode and getting rid of the stress or calming it down before it gets a hold (I have managed to avoid the 3 weeks stint of irritable bowel that I used to get by doing this). Walking away from it. I dont eat any of the bran fibre stuff, just vegetables, not much bread etc. Potatoes are fine with me, so are chips :slight_smile:

Unfortunately I cant get much control on the other symptoms, especially the achy fluey stuff, every time I overdo things, as having had all this for so long, I try to live my life, usually, run myself into exhaustion, then collapse with fatigue and more dizziness!

There is a lot of research, some coming to conclusions at the end of this year about CFS, so
maybe they will come up with something.

Christine

Oh, let’s see…

I have a fused foot and ankle, which confounds the balance issues. Plantar fascitis on my other foot caused by the added stress my good foot has to do to make up for the fused one. Like Scott, I also have IBS which I know was caused by too much alcohol, a steady diet of ibuprofen for over two years when I first broke my foot, and some other meds that I have taken over the years. I now have to take all medications with a meal, and watch the order in wich I eat my foods to prevent an emergency visit to the bathroom.

Brian