I’m 11 months in to my MAV/PPPD journey, having tried, failed, and restarted several different medications along the way. I’m currently on the following:
- Effexor (Venlafaxine) 37.5 mg / daily. Got to that level about a month ago, after a slow ramp up over 3 months.
- Verapamil 180 mg for about 4 months (tried 240, got headaches)
- Botox for about a month.
- Cefaly daily for about 3 months.
Verapamil helped with the ‘whenever I move my head’ dizziness. Effexor @ 10-30mg helped reduce overall dizziness and head pressure. Botox knocked me back to square one for 2 weeks, then (coupled with Effexor hitting 37.5mg), I had the best 7-8 days I’ve ever had. Almost no dizziness, no symptoms.
I then had another ‘attack’ about 10 days ago, which I’m now slowly recovering from.
Two things for the group:
- Thoughts on my progress?
- What would you do next? Add something? Increase? Remove? Do nothing and wait?