# \#community **URL:** https://mvertigo.org/tag/community/130.md [Latest](https://mvertigo.org/latest.md) · [Categories](https://mvertigo.org/categories.md) · [Tags](https://mvertigo.org/tags.md) --- ## [Tilted world - help needed!](https://mvertigo.org/t/tilted-world-help-needed/26176)
**Author:** [@tiltedworld](https://mvertigo.org/u/tiltedworld)\ **Replies:** 12\ **Last updated:** [October 10, 2026, 3:31am UTC](https://mvertigo.org/t/tilted-world-help-needed/26176 "2026-10-10T03:31:05Z")
I will stop chatting with ‘Chat/Gemini/Claude’ as this is the only forum where I am finding people that may know what is going on with me. I am 51 female have a previous history of vertigo, but hadn’t had an episode in y… --- ## [WALKING PART TWO: How much would you RECOMMEND someone walked per day?](https://mvertigo.org/t/walking-part-two-how-much-would-you-recommend-someone-walked-per-day/20936)
**Author:** [@turnitaround](https://mvertigo.org/u/turnitaround)\ **Replies:** 24\ **Last updated:** [October 6, 2026, 2:20pm UTC](https://mvertigo.org/t/walking-part-two-how-much-would-you-recommend-someone-walked-per-day/20936 "2026-10-06T14:20:14Z")
poll Note that I’ve purposefully limited this poll to Trust Level 2 members only who will likely have had more experience with a vestibular condition. --- ## [Change from Propanolol to Topamax](https://mvertigo.org/t/change-from-propanolol-to-topamax/25876)
**Author:** [@Stefany\_Chaplikov](https://mvertigo.org/u/Stefany_Chaplikov)\ **Replies:** 6\ **Last updated:** [October 6, 2026, 2:11pm UTC](https://mvertigo.org/t/change-from-propanolol-to-topamax/25876 "2026-10-06T14:11:17Z")
Hi I have been suffering from vestibular migraine for the last 4 months. The first medicine I was given was Amitriptyline, after 2 weeks of terrible paradoxical insomnia and depression, the Doctor stopped it and prescrib… --- ## [What made you happy today?](https://mvertigo.org/t/what-made-you-happy-today/20873)
**Author:** [@TexOkie](https://mvertigo.org/u/TexOkie)\ **Replies:** 42\ **Last updated:** [October 2, 2026, 12:39pm UTC](https://mvertigo.org/t/what-made-you-happy-today/20873 "2026-10-02T12:39:57Z")
We all seem to get caught up in our illness and how to treat it. But even then, we all can find something positive in our day that puts a smile on our face and a little pep in our step. What made you happy today? --- ## [How do you feel about ChatGPT for therapy? Are sites like this still useful?](https://mvertigo.org/t/how-do-you-feel-about-chatgpt-for-therapy-are-sites-like-this-still-useful/24326)
**Author:** [@turnitaround](https://mvertigo.org/u/turnitaround)\ **Replies:** 25\ **Last updated:** [September 27, 2026, 2:04pm UTC](https://mvertigo.org/t/how-do-you-feel-about-chatgpt-for-therapy-are-sites-like-this-still-useful/24326 "2026-09-27T14:04:40Z")
Sometimes when this site is quiet I wonder if people are using ChatGPT or similar to discuss their symptoms and get answers? Do you think the site still has value and do you think reading about and talking to real suffe… --- ## [Walking aids for walks](https://mvertigo.org/t/walking-aids-for-walks/16118)
**Author:** [@nin](https://mvertigo.org/u/nin)\ **Replies:** 16\ **Last updated:** [September 27, 2026, 10:34am UTC](https://mvertigo.org/t/walking-aids-for-walks/16118 "2026-09-27T10:34:47Z")
Hi, by pure accident now on two occasions when going for a walk I’ve had to use a large umbrella due to impending rain. whilst waiting for the rain, I found that having to carry the big brolly and use it as I’m walking i… --- ## [Has anyone recovered from a vestibular migraine lasting several weeks?](https://mvertigo.org/t/has-anyone-recovered-from-a-vestibular-migraine-lasting-several-weeks/26061)
**Author:** [@Somni](https://mvertigo.org/u/Somni)\ **Replies:** 22\ **Last updated:** [September 25, 2026, 4:16pm UTC](https://mvertigo.org/t/has-anyone-recovered-from-a-vestibular-migraine-lasting-several-weeks/26061 "2026-09-25T16:16:53Z")
Hi everyone, I’d like to introduce myself, but first I’d like to explain why I’m here. I’m currently feeling very depressed and quite alone because none of my doctors can really tell me what’s going on, and I don’t kno… --- ## [Hello! So glad I found this forum.](https://mvertigo.org/t/hello-so-glad-i-found-this-forum/26134)
**Author:** [@Matchy](https://mvertigo.org/u/Matchy)\ **Replies:** 4\ **Last updated:** [September 17, 2026, 3:29am UTC](https://mvertigo.org/t/hello-so-glad-i-found-this-forum/26134 "2026-09-17T03:29:43Z")
I’ve had issues with full ears and some dizziness issues periodically over the years. Two weeks ago, I woke up in the night feeling dizzy, and when I opened my eyes the room was rapidly spinning. It was pretty freaky! T… --- ## [My visual field is tilted/slanted... Anyone else have this?](https://mvertigo.org/t/my-visual-field-is-tilted-slanted-anyone-else-have-this/20448)
**Author:** [@surajm](https://mvertigo.org/u/surajm)\ **Replies:** 56\ **Last updated:** [September 16, 2026, 11:43pm UTC](https://mvertigo.org/t/my-visual-field-is-tilted-slanted-anyone-else-have-this/20448 "2026-09-16T23:43:27Z")
Hi all, I’ve been lurking on this website for some time now. I am so glad I found this community of people. Honestly, I’ve not been coping well. tl;dr - I woke up one morning in August 2020 and realized my entire visual… --- ## [Help choose our community’s future web address!](https://mvertigo.org/t/help-choose-our-community-s-future-web-address/26075)
**Author:** [@turnitaround](https://mvertigo.org/u/turnitaround)\ **Replies:** 9\ **Last updated:** [August 31, 2026, 2:36pm UTC](https://mvertigo.org/t/help-choose-our-community-s-future-web-address/26075 "2026-08-31T14:36:45Z")
When this site was founded many moons ago, its main focus was Migraine Associated Vertigo (“MAV”). Since then, medical terminology has evolved, and the condition is now more commonly known as Vestibular Migraine (VM). O… --- ## [PROPOSAL: Voluntary Membership Scheme](https://mvertigo.org/t/proposal-voluntary-membership-scheme/23035)
**Author:** [@turnitaround](https://mvertigo.org/u/turnitaround)\ **Replies:** 16\ **Last updated:** [August 28, 2026, 8:53pm UTC](https://mvertigo.org/t/proposal-voluntary-membership-scheme/23035 "2026-08-28T20:53:38Z")
Guys, Mvertigo still needs to pay its bills. I was recently approached by someone wishing to advertise their services on mvertigo. We agreed an initial subscription based agreement for such advertising. I’m in the pr… --- ## [the lived experiences of people with PPPD and how it affects their everyday lives.](https://mvertigo.org/t/the-lived-experiences-of-people-with-pppd-and-how-it-affects-their-everyday-lives/26136)
**Author:** [@Treesh](https://mvertigo.org/u/Treesh)\ **Replies:** 1\ **Last updated:** [August 28, 2026, 6:26pm UTC](https://mvertigo.org/t/the-lived-experiences-of-people-with-pppd-and-how-it-affects-their-everyday-lives/26136 "2026-08-28T18:26:21Z")
Hi! I’m an undergrad planning to do research on PPPD. There’s very little awareness of it in my country. If my proposal gets approved, would some of you be willing to participate in an anonymous online questionnaire abou… --- ## [20 months (ongoing) of PPPD, Occipital tension, tinnitus +more](https://mvertigo.org/t/20-months-ongoing-of-pppd-occipital-tension-tinnitus-more/26074)
**Author:** [@Charlie](https://mvertigo.org/u/Charlie)\ **Replies:** 8\ **Last updated:** [August 1, 2026, 9:21am UTC](https://mvertigo.org/t/20-months-ongoing-of-pppd-occipital-tension-tinnitus-more/26074 "2026-08-01T09:21:16Z")
Hi there mvertigo community :slight\_smile: New to this forum but would love to get some views on my ongoing symptoms. I’ll do my best to not make this a super long read. Dec 2024 - had BPPV during the early hours whils… --- ## [Kind request to members in US & UK.](https://mvertigo.org/t/kind-request-to-members-in-us-uk/26040)
**Author:** [@turnitaround](https://mvertigo.org/u/turnitaround)\ **Replies:** 10\ **Last updated:** [July 6, 2026, 6:22am UTC](https://mvertigo.org/t/kind-request-to-members-in-us-uk/26040 "2026-07-06T06:22:51Z")
Hey guys, Summary I need your help if you are in the US or UK! :folded\_hands: I would ask you kindly if you are intending on using Amazon to shop, please enter using this site by clicking one of the affiliate product a… --- ## [90% recovered](https://mvertigo.org/t/90-recovered/26042)
**Author:** [@Amylouise](https://mvertigo.org/u/Amylouise)\ **Replies:** 9\ **Last updated:** [June 25, 2026, 1:23pm UTC](https://mvertigo.org/t/90-recovered/26042 "2026-06-25T13:23:55Z")
Gosh I haven’t been on here in years ! However I remember being so annoyed when people didn’t come back and update so here I am! a lot has changed for me I now have twin boys ! They are my world and I did end up on a l… --- ## [Sensory overload - my most disabling symptom](https://mvertigo.org/t/sensory-overload-my-most-disabling-symptom/535)
**Author:** [@system](https://mvertigo.org/u/system)\ **Replies:** 23\ **Last updated:** [May 31, 2026, 3:17am UTC](https://mvertigo.org/t/sensory-overload-my-most-disabling-symptom/535 "2026-05-31T03:17:04Z")
hi everyone, i joined a while back, but stuck mostly with PM’s because of the difficulty in reading the board. i’ll probably continue to pursue that method until i’m feeling better, at which time i’ll post my entire st… --- ## [Vestibular Rehabilitation Therapy (VRT)](https://mvertigo.org/t/vestibular-rehabilitation-therapy-vrt/14995)
**Author:** [@turnitaround](https://mvertigo.org/u/turnitaround)\ **Replies:** 13\ **Last updated:** [April 8, 2026, 11:40pm UTC](https://mvertigo.org/t/vestibular-rehabilitation-therapy-vrt/14995 "2026-04-08T23:40:48Z")
Your health practitioner may refer you for VRT with the hope of reducing your symptoms and improving your quality of life. Vestibular Rehabilitation Therapy (VRT) is a Physical Therapy for helping the brain compensat… --- ## [Secondary Hydrops, PLF and my 3rd PLF Repair](https://mvertigo.org/t/secondary-hydrops-plf-and-my-3rd-plf-repair/15427)
**Author:** [@dizzylife](https://mvertigo.org/u/dizzylife)\ **Replies:** 32\ **Last updated:** [April 2, 2026, 8:51pm UTC](https://mvertigo.org/t/secondary-hydrops-plf-and-my-3rd-plf-repair/15427 "2026-04-02T20:51:03Z")
This is the first post I’ve made here, I have to admit that because I don’t have MAV I tend not to participate too much, however because I was misdiagnosed with everything from TMJ to BPV (even a tentative MAV) prior to … --- ## [MavGlasses - where to buy them?](https://mvertigo.org/t/mavglasses-where-to-buy-them/6233)
**Author:** [@waspcharmer](https://mvertigo.org/u/waspcharmer)\ **Replies:** 6\ **Last updated:** [March 24, 2026, 4:29pm UTC](https://mvertigo.org/t/mavglasses-where-to-buy-them/6233 "2026-03-24T16:29:55Z")
Websites, stores, all suggestions welcomed. I need something I can wear daily for a relatively cheap price, but good quality. I told myself I’d never give in as I thought it would look silly/draw attention and ‘lessen my… --- ## [Candesartan](https://mvertigo.org/t/candesartan/16153)
**Author:** [@sputnik2](https://mvertigo.org/u/sputnik2)\ **Replies:** 7\ **Last updated:** [March 7, 2026, 11:12am UTC](https://mvertigo.org/t/candesartan/16153 "2026-03-07T11:12:26Z")
There are some older, short threads about this drug but i wondering if anyone has taken it recently and has it helped. Dr S has prescribed me pregablin but I’m too scared to take it. He has written to my GP and suggested… --- ## [New here, unsure about diagnosis, and looking for support](https://mvertigo.org/t/new-here-unsure-about-diagnosis-and-looking-for-support/24043)
**Author:** [@amyb333](https://mvertigo.org/u/amyb333)\ **Replies:** 14\ **Last updated:** [February 23, 2026, 5:27am UTC](https://mvertigo.org/t/new-here-unsure-about-diagnosis-and-looking-for-support/24043 "2026-02-23T05:27:12Z")
Hello, my name is Amy, age 48, currently living in Phoenix, AZ. I have been struggling with dizziness/vertigo for the past 10+ years. It started with mild, intermittent symptoms that were few and far between, and has wor… --- ## [I've had PPPD (I think) for 4 years now. Am I beyond repair or is there hope?](https://mvertigo.org/t/ive-had-pppd-i-think-for-4-years-now-am-i-beyond-repair-or-is-there-hope/24013)
**Author:** [@joeharris](https://mvertigo.org/u/joeharris)\ **Replies:** 25\ **Last updated:** [February 14, 2026, 11:14pm UTC](https://mvertigo.org/t/ive-had-pppd-i-think-for-4-years-now-am-i-beyond-repair-or-is-there-hope/24013 "2026-02-14T23:14:42Z")
I’ve been constantly dizzy-ish for 4 years now, constantly swaying. Its horrible and the last 24 hours I’ve been crying non stop because of how shit it is and realising how much time I’ve lost. I’ve come to accept the di… --- ## [Spa Treatment](https://mvertigo.org/t/spa-treatment/2623)
**Author:** [@Jenlo](https://mvertigo.org/u/Jenlo)\ **Replies:** 9\ **Last updated:** [January 30, 2026, 10:09am UTC](https://mvertigo.org/t/spa-treatment/2623 "2026-01-30T10:09:08Z")
Hello all Bit of a strange question that you may be able to help me with. I’ve just won a free months pass for a local spa. This includes sauna, steam room, spa pool and plunge pool. I want to use this as I’m hoping it’… --- ## [Nortriptyline seems to be working!](https://mvertigo.org/t/nortriptyline-seems-to-be-working/7674)
**Author:** [@Nancy\_W](https://mvertigo.org/u/Nancy_W)\ **Replies:** 25\ **Last updated:** [January 22, 2026, 2:52pm UTC](https://mvertigo.org/t/nortriptyline-seems-to-be-working/7674 "2026-01-22T14:52:57Z")
I too will weigh in on my nortriptyline trial, and am happy to report that it seems to be having a big positive effect! I’m almost 3 months into it, taking 50 mg, having started at 10 and worked up to 50 within 2-3 week… --- ## [My appt. with Dr. Baloh at UCLA yesterday](https://mvertigo.org/t/my-appt-with-dr-baloh-at-ucla-yesterday/4272)
**Author:** [@irishgirl45](https://mvertigo.org/u/irishgirl45)\ **Replies:** 41\ **Last updated:** [November 26, 2025, 11:00am UTC](https://mvertigo.org/t/my-appt-with-dr-baloh-at-ucla-yesterday/4272 "2025-11-26T11:00:42Z")
Hi everyone, I did the all of the eng testing in the morning for about 1 1/2 hours. The tests were draining and seemed to go on for longer than that. I saw Dr. Baloh in the afternoon and he said all of my vestibular t… --- ## [Where to Start?](https://mvertigo.org/t/where-to-start/18457)
**Author:** [@sfnative](https://mvertigo.org/u/sfnative)\ **Replies:** 42\ **Last updated:** [November 15, 2025, 9:05pm UTC](https://mvertigo.org/t/where-to-start/18457 "2025-11-15T21:05:15Z")
So many years, so little understanding . . . here’s the abbreviated version: My first medical appointment was about 15 years ago with complaints of hearing loss, tinnitus, ear fullness, etc. Referred by my primary care… --- ## [Intro story, and question about explaining your symptoms](https://mvertigo.org/t/intro-story-and-question-about-explaining-your-symptoms/25821)
**Author:** [@DizzyDan](https://mvertigo.org/u/DizzyDan)\ **Replies:** 13\ **Last updated:** [November 11, 2025, 4:15pm UTC](https://mvertigo.org/t/intro-story-and-question-about-explaining-your-symptoms/25821 "2025-11-11T16:15:32Z")
Hi everyone, New here! Hope you’ll indulge me a quick rant. I’m six weeks back into the world of 24/7 being dizzy (and disoriented, sensation of movement, difficulty focusing, feeling of being pulled down, tinnitus, et… --- ## [Dr. Beh - Virtual Visit](https://mvertigo.org/t/dr-beh-virtual-visit/21877)
**Author:** [@Persephone](https://mvertigo.org/u/Persephone)\ **Replies:** 14\ **Last updated:** [October 28, 2025, 9:26pm UTC](https://mvertigo.org/t/dr-beh-virtual-visit/21877 "2025-10-28T21:26:02Z")
Has anyone on here had a positive experience via telehealth with Dr. Beh? Thank you! --- ## [New Here](https://mvertigo.org/t/new-here/17957)
**Author:** [@Andy](https://mvertigo.org/u/Andy)\ **Replies:** 34\ **Last updated:** [October 15, 2025, 6:57am UTC](https://mvertigo.org/t/new-here/17957 "2025-10-15T06:57:46Z")
Hi Everyone! I can’t believe i’ve joined a forum on the internet. Sorry that i am here! I could go on and on about my story but in short I became ill in October 2016 aged 33. I went from being a ‘high achiever’, perfec… --- ## [New weird symptoms](https://mvertigo.org/t/new-weird-symptoms/23961)
**Author:** [@Torietho](https://mvertigo.org/u/Torietho)\ **Replies:** 14\ **Last updated:** [October 11, 2025, 10:33pm UTC](https://mvertigo.org/t/new-weird-symptoms/23961 "2025-10-11T22:33:25Z")
Has anyone had this before? I got diagnosed over a year ago now and on regular medication for my vestibular migraine, but recently my symptoms have been changing and I don’t feel like there’s any light at the end of the … [Next page](https://mvertigo.org/tag/community/130.md?match_all_tags=true&page=1&tags%5B%5D=community)