# \#pppd **URL:** https://mvertigo.org/tag/pppd/22.md [Latest](https://mvertigo.org/latest.md) · [Categories](https://mvertigo.org/categories.md) · [Tags](https://mvertigo.org/tags.md) --- ## [the lived experiences of people with PPPD and how it affects their everyday lives.](https://mvertigo.org/t/the-lived-experiences-of-people-with-pppd-and-how-it-affects-their-everyday-lives/26136)
**Author:** [@Treesh](https://mvertigo.org/u/Treesh)\ **Replies:** 1\ **Last updated:** [August 28, 2026, 6:26pm UTC](https://mvertigo.org/t/the-lived-experiences-of-people-with-pppd-and-how-it-affects-their-everyday-lives/26136 "2026-08-28T18:26:21Z")
Hi! I’m an undergrad planning to do research on PPPD. There’s very little awareness of it in my country. If my proposal gets approved, would some of you be willing to participate in an anonymous online questionnaire abou… --- ## [Does anyone with PPPD experience this when closing their eyes?](https://mvertigo.org/t/does-anyone-with-pppd-experience-this-when-closing-their-eyes/26089)
**Author:** [@sinneesl](https://mvertigo.org/u/sinneesl)\ **Replies:** 4\ **Last updated:** [August 6, 2026, 6:13pm UTC](https://mvertigo.org/t/does-anyone-with-pppd-experience-this-when-closing-their-eyes/26089 "2026-08-06T18:13:24Z")
Hi everyone, I was recently diagnosed with PPPD by an ENT specialist. I also have Generalized Anxiety Disorder (GAD), and I have started vestibular physiotherapy and CBT. I’m wondering if anyone here has experienced sy… --- ## [20 months (ongoing) of PPPD, Occipital tension, tinnitus +more](https://mvertigo.org/t/20-months-ongoing-of-pppd-occipital-tension-tinnitus-more/26074)
**Author:** [@Charlie](https://mvertigo.org/u/Charlie)\ **Replies:** 8\ **Last updated:** [August 1, 2026, 9:21am UTC](https://mvertigo.org/t/20-months-ongoing-of-pppd-occipital-tension-tinnitus-more/26074 "2026-08-01T09:21:16Z")
Hi there mvertigo community :slight\_smile: New to this forum but would love to get some views on my ongoing symptoms. I’ll do my best to not make this a super long read. Dec 2024 - had BPPV during the early hours whils… --- ## [I've had PPPD (I think) for 4 years now. Am I beyond repair or is there hope?](https://mvertigo.org/t/ive-had-pppd-i-think-for-4-years-now-am-i-beyond-repair-or-is-there-hope/24013)
**Author:** [@joeharris](https://mvertigo.org/u/joeharris)\ **Replies:** 25\ **Last updated:** [February 14, 2026, 11:14pm UTC](https://mvertigo.org/t/ive-had-pppd-i-think-for-4-years-now-am-i-beyond-repair-or-is-there-hope/24013 "2026-02-14T23:14:42Z")
I’ve been constantly dizzy-ish for 4 years now, constantly swaying. Its horrible and the last 24 hours I’ve been crying non stop because of how shit it is and realising how much time I’ve lost. I’ve come to accept the di… --- ## [Our Journey with Undiagnosed Dizziness, Anxiety, and PPPD Symptoms](https://mvertigo.org/t/our-journey-with-undiagnosed-dizziness-anxiety-and-pppd-symptoms/24396)
**Author:** [@Carmen6975](https://mvertigo.org/u/Carmen6975)\ **Replies:** 5\ **Last updated:** [July 23, 2025, 9:41am UTC](https://mvertigo.org/t/our-journey-with-undiagnosed-dizziness-anxiety-and-pppd-symptoms/24396 "2025-07-23T09:41:30Z")
Hi everyone, my name is Carmen and I’m posting on behalf of my daughter, Mia. We live in Maryland. Mia is only 18 and has been struggling with what we believe is PPPD for about four months now. It all started after she … --- ## [Dani’s Success Story: Recovery From PPPD & Vestibular Migraine, Eustachian Tube Dysfunction & More](https://mvertigo.org/t/dani-s-success-story-recovery-from-pppd-vestibular-migraine-eustachian-tube-dysfunction-more/24324)
**Author:** [@turnitaround](https://mvertigo.org/u/turnitaround)\ **Replies:** 5\ **Last updated:** [June 21, 2025, 9:58pm UTC](https://mvertigo.org/t/dani-s-success-story-recovery-from-pppd-vestibular-migraine-eustachian-tube-dysfunction-more/24324 "2025-06-21T21:58:53Z")
Dani’s success story illustrates that conditions like PPPD, vestibular migraines, and Eustachian tube dysfunction are treatable through understanding emotional patterns and addressing stressors. With gentle… --- ## [Vestibular Migraine/ Menieres/ PPPD combo](https://mvertigo.org/t/vestibular-migraine-menieres-pppd-combo/24165)
**Author:** [@mattjwhity](https://mvertigo.org/u/mattjwhity)\ **Replies:** 4\ **Last updated:** [June 10, 2025, 12:10am UTC](https://mvertigo.org/t/vestibular-migraine-menieres-pppd-combo/24165 "2025-06-10T00:10:55Z")
Hi everyone I seem to be suffering with a mixture of all 3 conditions (Vestibular Migraine/ Menieres/PPPD) which is driving me insane. Tried the following medications but they haven’t worked: Prochloperazine (worked i… --- ## [PPPD E Book on Kindle Unlimited](https://mvertigo.org/t/pppd-e-book-on-kindle-unlimited/23759)
**Author:** [@DizzyandConfused](https://mvertigo.org/u/DizzyandConfused)\ **Replies:** 3\ **Last updated:** [March 1, 2025, 2:13pm UTC](https://mvertigo.org/t/pppd-e-book-on-kindle-unlimited/23759 "2025-03-01T14:13:50Z")
Sorry not sure where to post this. I subscribe to Kindle Unlimited UK and saw a book recommended. Its by Mark Knoblauch PhD. He has degrees in sports medicine and molecular biology. He also has Meniere’s and believes he … --- ## [Vestibular rehab therapy](https://mvertigo.org/t/vestibular-rehab-therapy/23849)
**Author:** [@Masonetta](https://mvertigo.org/u/Masonetta)\ **Replies:** 9\ **Last updated:** [November 10, 2024, 5:02pm UTC](https://mvertigo.org/t/vestibular-rehab-therapy/23849 "2024-11-10T17:02:48Z")
My tip is: If there’s any opportunity for vestibular rehab therapy, take it, even if you feel it won’t help! I say this mainly because the two PTs I have encountered over the years have been mines of information and insi… --- ## [Hello, VM & PPPD 2yrs and completely lost/confused](https://mvertigo.org/t/hello-vm-pppd-2yrs-and-completely-lost-confused/23345)
**Author:** [@Lotte](https://mvertigo.org/u/Lotte)\ **Replies:** 21\ **Last updated:** [October 21, 2024, 9:31am UTC](https://mvertigo.org/t/hello-vm-pppd-2yrs-and-completely-lost-confused/23345 "2024-10-21T09:31:21Z")
Hello all, I’m Lotte and 27 years old. I’m so glad to have come across this website, it’s so relieving to have a space to speak and hear from others going through similar times. I’ll try to explain the last almost two … --- ## [Advancements in Functional Magnetic Resonance Imaging for Persistent...](https://mvertigo.org/t/advancements-in-functional-magnetic-resonance-imaging-for-persistent/23768)
**Author:** [@DizzyandConfused](https://mvertigo.org/u/DizzyandConfused)\ **Replies:** 2\ **Last updated:** [October 11, 2024, 12:27pm UTC](https://mvertigo.org/t/advancements-in-functional-magnetic-resonance-imaging-for-persistent/23768 "2024-10-11T12:27:40Z")
Interesting new scientific paper on using functional MRI scanning on patients with PPPD, showing changes in brain function and connectivity between them and healthy control group. --- ## [Really Migraine?](https://mvertigo.org/t/really-migraine/23737)
**Author:** [@turnitaround](https://mvertigo.org/u/turnitaround)\ **Replies:** 8\ **Last updated:** [September 29, 2024, 8:09am UTC](https://mvertigo.org/t/really-migraine/23737 "2024-09-29T08:09:00Z")
My first diagnosis was from an oto-neurologist and I told her about one migraine I had had (one) and she used that as evidence that I was a migraineur. I didn’t find that convincing at the time and was very skeptical abo… --- ## [Full recovery](https://mvertigo.org/t/full-recovery/23014)
**Author:** [@DizzyK1](https://mvertigo.org/u/DizzyK1)\ **Replies:** 2\ **Last updated:** [May 30, 2024, 5:49pm UTC](https://mvertigo.org/t/full-recovery/23014 "2024-05-30T17:49:46Z")
Hi everyone, @moderator if possible could this be moved to success stories as I am unable to post there? I just wanted to give an update coming into the New Year and hopefully spread some positivity!! Following my las… --- ## [Could this be MAV or PPPD](https://mvertigo.org/t/could-this-be-mav-or-pppd/21797)
**Author:** [@DizzyandConfused](https://mvertigo.org/u/DizzyandConfused)\ **Replies:** 17\ **Last updated:** [June 12, 2023, 1:26am UTC](https://mvertigo.org/t/could-this-be-mav-or-pppd/21797 "2023-06-12T01:26:08Z")
Hi I’m new and have been reading the boards for some time trying to get to the bottom of what is going on. I thought I’d type a bit of a timeline as I have several medical/chronic issues I’m contending with at the mome… --- ## [Hi my name is Jazmin](https://mvertigo.org/t/hi-my-name-is-jazmin/21501)
**Author:** [@Jazmin\_Garcia03](https://mvertigo.org/u/Jazmin_Garcia03)\ **Replies:** 2\ **Last updated:** [March 19, 2022, 2:23pm UTC](https://mvertigo.org/t/hi-my-name-is-jazmin/21501 "2022-03-19T14:23:40Z")
Hi my name is Jazmin (I’m 22 years old). They had me on Anti-anxiety medication for 8 years because my psychiatrist and therapist thought I had social anxiety disorder. I have a feeling its more than just that. When I wa… --- ## [Medication for PPPD](https://mvertigo.org/t/medication-for-pppd/19983)
**Author:** [@dave1](https://mvertigo.org/u/dave1)\ **Replies:** 9\ **Last updated:** [November 1, 2021, 4:05am UTC](https://mvertigo.org/t/medication-for-pppd/19983 "2021-11-01T04:05:32Z")
A question for people on here diagnosed with PPPD: do you take medication and, if so, how is it? As some of you will have read elsewhere, my problem is lightheadedness, head pressure and visually induced dizziness (no s… --- ## [MAV vs PPPD help!!](https://mvertigo.org/t/mav-vs-pppd-help/16376)
**Author:** [@Sillysock](https://mvertigo.org/u/Sillysock)\ **Replies:** 17\ **Last updated:** [April 18, 2021, 2:29pm UTC](https://mvertigo.org/t/mav-vs-pppd-help/16376 "2021-04-18T14:29:44Z")
Ok I am at a bit of a hurdle as I am now really confused about the difference between MAV and PPPD. I was on holiday (beginning of July) when this started and it was much more severe I.e could feel the room spinning and … --- ## [PPPD - what's the consensus here?](https://mvertigo.org/t/pppd-whats-the-consensus-here/15412)
**Author:** [@pugg](https://mvertigo.org/u/pugg)\ **Replies:** 60\ **Last updated:** [April 11, 2021, 8:42am UTC](https://mvertigo.org/t/pppd-whats-the-consensus-here/15412 "2021-04-11T08:42:24Z")
I am asking about PPPD, or 3PD, because some of the symptoms associated with it match my own and I’m never sure to what degree those symptoms are shared with VM and MD in others. Specifically; the chronic, more often … --- ## [PPPD epidemic about to hit the UK](https://mvertigo.org/t/pppd-epidemic-about-to-hit-the-uk/15454)
**Author:** [@Onandon03](https://mvertigo.org/u/Onandon03)\ **Replies:** 27\ **Last updated:** [October 22, 2020, 6:48pm UTC](https://mvertigo.org/t/pppd-epidemic-about-to-hit-the-uk/15454 "2020-10-22T18:48:20Z")
According to an article by Natasha Wynarczyk in a copy of the Daily Mail dated 22nd May 2018 PPPD was only ‘classified last year and is still unknown to many medical professionals’. I am now wondering if it will become… --- ## [PPPD - or just MAV Stage 4?](https://mvertigo.org/t/pppd-or-just-mav-stage-4/18399)
**Author:** [@Onandon03](https://mvertigo.org/u/Onandon03)\ **Replies:** 10\ **Last updated:** [October 29, 2020, 12:15pm UTC](https://mvertigo.org/t/pppd-or-just-mav-stage-4/18399 "2020-10-29T12:15:43Z")
Worth a read on a rainy day maybe. A very rainy day. It seems more about people’s reactions to it than the condition itself but i guess that’s what PPPD is - a reaction. I must admit I‘ve only read bits but they do … --- ## [Suffering from MAV or PPPD](https://mvertigo.org/t/suffering-from-mav-or-pppd/14618)
**Author:** [@Ron\_Denning](https://mvertigo.org/u/Ron_Denning)\ **Replies:** 19\ **Last updated:** [January 17, 2018, 1:19pm UTC](https://mvertigo.org/t/suffering-from-mav-or-pppd/14618 "2018-01-17T13:19:01Z")
I was diagnosed with MAV June 2016 and PPPD November 2017. These appear to be very similar conditions and was told PPPD has a psychological component. The drug combination that had helped me before was Gabapentin with Am…