I’ve been dizzy for 1 year. When I say dizzy I mean 24/7 spinning, floating, on a boat like feeling which ranges in severity throughout the day. I am mostly housebound and have been this way for several months. I push myself to go out on an hour long dog walk with my partner when I can.
My GP diagnosed labyrinthitis to start with but then put my dizziness down to anxiety as I had a mental health crisis when my symptoms first started. I have come out of that crisis somewhat now but still feel stuck in a constant state of anxiety and nowhere near who I was before these symptoms came about.
More recently I have had a private appointment and have been told my symptoms are likely to be caused by a migraine associated balance disorder.
I am due to start 10mg of nortriptyline this evening. I am quite nervous as I don’t want to do anything which could potentially make these symptoms worse.
I’m finding the loneliness and isolation really difficult. I have an amazing partner who is doing everything he can for me, reassuring me that we’ll get through this. My family don’t really understand and just leave me to it. I had friends, but I gave up on reaching out first all the time and pretending that things aren’t as bad as they are. I can’t work and am having to hand in my notice.
I want to escape these symptoms, just for 5 minutes. 5 minutes of feeling OK again. I’m afraid of missing another year of my life. Last year when my symptoms started and I missed Christmas time and my birthday, we all said how I would be able to make up for it this year… I didn’t expect to be in exactly the same position I was in then.
I’ve read so many success stories but I just feel like I am never going to get there.
I am going to try and find the confidence to take this nortriptyline tonight and holding on to the hope that it might get better eventually.
Thanks for reading I just needed to get it out there