Hi all - I wondered has anybody ever been told to take 100mg of sumatriptan for prevention of flare ups? Just had my private Neuro report come back and she’s suggested 100mg of sumatriptan for flare ups. At first I thought it was a typo! As mine are 5mg…
Prevention or as recue med?
Rescue med for flare ups. I never heard of such a high dose of triptan before.
Are you able to ring your neuro to check whether 100 mg is correct or whether it is indeed a typo?
I’ll be very interested to hear if this helps with more than headaches.
That does sound extreme, and James is right, Triptans are fantastic for headaches, not at all for the dizzy’s I’m afraid. Well for me anyway
This was stated at the bottom of the page, 100mg sumatriptan. Seems like a crazy dose but I guess she is the headache specialist. I’ve emailed her to find out if it’s a mistake or not.
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Interesting, hope it works for you Kirsty, keep us posted!
Using search I found @GetBetter had mentioned this here: Rescue meds - #28 by GetBetter 
The NHs site says this:Do not take more than the prescribed amount in any 24-hour period. The maximum amount is 300mg of tablets, 12mg as injections or 40mg as a nasal spray.
A 100mg tablet does exist: https://www.medicines.org.uk/emc/product/708/smpc
The leaflet for the 100mg dose says this: Although the recommended dose of oral sumatriptan is 50mg, migraine attacks vary in severity both within and between patients. Doses of 25-100mg have shown greater efficacy than placebo in clinical trials, but 25mg is statistically significantly less effective than 50 and 100mg.
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Than you @sputnik2 I really didn’t know about this at all so it would appear that my consultation was well worth the money! I’m yet to trial it but I have all the information I need now going forward to try and gain some better control over these flare ups.
Thank you for your message! Very informative 
Sorry I’m late to the thread, but yes I have taken 100mg several times. Usually I take 50mg though because it’s usually the right amount for me.
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Hey Erik
Oh really? Wow well I suppose that’s something else I can try at the start of another flare. Am I right in thinking we spoke about CBD oil a while ago? I’m really interested in medical marijuana and the benefits of it without the high of course. I’m also looking into a cefaly device. Really anything at this point to try and combat flare ups.
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Yep, CBD oil is something to try. Sometimes I just use a bit of THC too, but not enough to get high. +1 for Cefaly, just used mine for an hour yesterday during a flare up, it put me to sleep…
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Hey Erik
No worries! Thank you for taking the time to reply to me
Yes, it does make me think. I know in the UK now medical marijuana is a thing and something I’m going to speak to my Neuro about soon. Have you ever tried Venlafaxine?
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No I haven’t tried Venlafaxine, it was on my list to try but I got better so no need at this point. (-: The issue Neuros have with medical marijuana is that the ingredients are not well controlled like pharmaceuticals. Even batch to batch of the same brand of CBD you are going to get different compounds and thus possibly different results. This isn’t a reason NOT to use them, but I think its helpful to know why normal doctors are reluctant to prescribe them.
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