Last night I woke up to a really weird visual symptom. It was gone in the morning, thank goodness!
It was like I saw my vision trail behind. For example, if I waved my hand in front of my face, I saw the trail of the visual it left behind. Is that what people refer to as āghost images?ā
When I pulled the quilt back, the same thing happened, I saw like a trail behind the visual itself. Oh my god, I sound mad!
It was like waking up in a fun house!
It went as quickly as it came I guess.
Could that be migraine related. Canāt think of anything else. My vision is normal today!
Hi
Iāve had it as wellā¦
another thing I did was tweeze my eyebrows in one of those lighted square magnifying mirrors and then I could see the outline of that lighted image for like 20 minutes afterā¦weird!!
U have mentioned that u see shimmerring of patterns all the time which is the same symptom that I have. Itās part of a diagnoses called persistent migraine aura which also includes ghosting/trails that u describe. I get this 24/7. U r lucky that yours went away
Kelley, I get a lot of after images too. It is so frustrating!!!
Thanks for making me feel a bit more normal.
Jem, Iām not sure if it was Topa or just me. I have now finally increased to 50mg. I was so scared to do so and I am feeling more off balance again but I am going to give myself a breather now at 50mg for a month to let the dust settle.
Itās nearly that time of month for me so I am getting panicky and I wanted to increase if at all possible.
Nabeel, yes I also see shimmering of patterns all the time. When I āgoogleā anything about this though I keep getting conflicting info. Persistent migraine aura keeps coming up more as the typical aura symptoms lastings days. Not an ongoing shimmering. I canāt seem to find an answer for that. Nor can I find an answer for my symptom that I get when it seems like someone quickly flicks the light on and off. That one scares me and I have no idea what that is! It only lasts a split second - a flicker like before a lighting blackout but I cant find any clear outline. Only that it too must be migraine?
There seemed to be something about shimmering from āinfractionā in the eyes, although I know thatās not our issue. Itās migraine no doubt.
I am so sorry that yours doesnāt shift. Are you still on Topamax? Has it helped at all? Did I read you are now trying Exeffor?
sorry late reply dont come on as often as i used too. trying to put this junk behind me and move on. your symptoms i.e. shimmering patterns, after images, split second light on and off, trail behind your hand/quilt is all part of one diagnosis called persistent migraine aura without infarction as outlined by the IHS. its a very rare variant of migraine. its also called visual snow syndrome. if u wish to find out more about your symptoms u can join a group called āvisual snowā on facebook. currently research is being conducted at UCLA in SF on this syndrome. some people have it in the progressive form and much worst than us. like some see colored dots moving about in their entire visual field. with me its been pretty much constant. the sad part with me is that i ended up having vm with the vs (visual snow) and tinnitus. most people either have vm or vs.
I think Iāve had visual snow prior to the onset of my VM. Things were starting to look grainy at night and my night vision has been seriously deteriorating. Iāve since started to notice the shimmery vision and sparkles during the day. Overall my visual vertigo and oscillopsia has been slowly improving.
I started taking Lexapro last Tuesday mainly for The depression that came along with this illness, so I donāt know if the meds helping or if itās just my mental state is a little bit better. I have noticed that Iām having tremors in my hands and legs but I think that is due to the hyperactive state my body and brain have been in the last 2.5 months of dealing with this. I donāt know if this sounds silly, but I feel like my brain is slowly healing and I think a lot of it has to do with getting in a better mental state to deal with this illness.
Agree, itās your mental state thatās improving hence you are less symptomatic. Note, the visual symptoms is something you will get āused toā and you will be able to live with it. Just get your dizziness under control with the meds and you will be fine. Good luck !
Pleased to read you are feeling more at ease with your current situation. The more relaxed you are the easier it will be cope. I know itās not easy. Things that affect the eyes can be particularly upsetting. Hope the Lexapro helps but donāt forget to mention those tremors to your doctor just in case itās important.